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- Title
Identifying health-related quality of life concepts to inform the development of the WOUND-Q.
- Authors
Tsangaris, Elena; van Haren, Emiel LWG; Poulsen, Lotte; Squitieri, Lee; Hoogbergen, Maarten M; Cross, Karen; Sørensen, Jens Ahm; van Alphen, Tert C; Pusic, Andrea; Klassen, Anne F
- Abstract
Objective: The impact of hard-to-heal wounds extends beyond traditional clinical metrics, negatively affecting a patient's health-related quality of life (HRQoL). Yet treatment outcomes are seldom measured from the patient's perspective. The purpose of the present study was to perform in-depth qualitative interviews with patients diagnosed with varying types of hard-to-heal wounds to identify outcomes important to them. Method: Participants were recruited from wound care clinics in Canada, Denmark, the Netherlands and the US, and were included if they had a hard-to-heal wound (i.e., lasting ≥3 months), were aged ≥18 years, and fluent in English, Dutch or Danish. Qualitative interviews took place between January 2016 and March 2017. An interpretive description qualitative approach guided the data analysis. Interviews were audio-recorded, transcribed and coded line-by-line. Codes were categorised into top-level domains and themes that formed the final conceptual framework. Results: We performed 60 in-depth interviews with patients with a range of wound types in different anatomic locations that had lasted from three months to 25 years. Participants described outcomes that related to three top-level domains and 13 major themes: wound (characteristics, healing); HRQoL (physical, psychological, social); and treatment (cleaning, compression stocking, debridement, dressing, hyperbaric oxygen, medication, suction device, surgery). Conclusion: The conceptual framework developed as part of this study represents the outcome domains that mattered the most to the patients with hard-to-heal wounds. Interview quotes were used to generate items that formed the WOUND-Q scales, a patient-reported outcome measure for patients with hard-to-heal wounds.
- Subjects
DENMARK; NETHERLANDS; CANADA; UNITED States; WOUND healing; TRAUMATOLOGY diagnosis; CHRONIC wounds &; injuries; DEBRIDEMENT; HEALTH status indicators; HEALTH outcome assessment; INTERVIEWING; COMPRESSION garments; PATIENTS' attitudes; QUALITATIVE research; CONCEPTUAL structures; QUALITY of life; RESEARCH funding; QUESTIONNAIRES; WOUND care; SURGICAL dressings; BANDAGES &; bandaging
- Publication
Journal of Wound Care, 2024, Vol 33, Issue 1, p28
- ISSN
0969-0700
- Publication type
Article
- DOI
10.12968/jowc.2024.33.1.28