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'That would be dreadful': The ethical, legal, and social challenges of sharing your Alzheimer's disease biomarker and genetic testing results with others.
- Published in:
- Journal of Law & the Biosciences, 2021, v. 8, n. 1, p. 1, doi. 10.1093/jlb/lsab004
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- Publication type:
- Article
Awareness of diagnosis predicts changes in quality of life in individuals with mild cognitive impairment and mild stage dementia.
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- International Journal of Geriatric Psychiatry, 2023, v. 38, n. 6, p. 1, doi. 10.1002/gps.5939
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- Publication type:
- Article
Effect of gamification with a support partner to increase physical activity in older adults at risk for Alzheimer's disease: The STEP 4Life randomized clinical trial.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2024, v. 20, n. 8, p. 5450, doi. 10.1002/alz.14058
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- Publication type:
- Article
How reactions to a brain scan result differ for adults based on self‐identified Black and White race.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2024, v. 20, n. 3, p. 1527, doi. 10.1002/alz.13558
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- Publication type:
- Article
Safe, Social, and Engaged: Clinician perspectives on good institution‐free days for people with dementia.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2023, v. 19, p. 1, doi. 10.1002/alz.075077
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- Publication type:
- Article
Factors influencing choice and ability to age in place: A qualitative study with patients, caregivers, and clinicians.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2023, v. 19, p. 1, doi. 10.1002/alz.074935
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- Publication type:
- Article
How intention to join an Alzheimer's participant recruitment registry differs by race, ethnicity, sex, and family history: Results from a national survey of US adults.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2023, v. 19, n. 12, p. 5399, doi. 10.1002/alz.13126
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- Publication type:
- Article
Cognition research in LGBTQIA+ groups: What's it mean for Alzheimer's research?
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2022, v. 18, n. 11, p. 1, doi. 10.1002/alz.066244
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- Publication type:
- Article
Is there a difference between terminal lucidity and paradoxical lucidity?
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- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2022, v. 18, n. 3, p. 540, doi. 10.1002/alz.12579
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- Publication type:
- Article
What is paradoxical lucidity? The answer begins with its definition.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2022, v. 18, n. 3, p. 513, doi. 10.1002/alz.12424
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- Publication type:
- Article
What words and concepts do people enrolled in research registries use to describe them?
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2021, v. 17, p. 1, doi. 10.1002/alz.056141
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- Publication type:
- Article
Preliminary results from the COVID caregiving project.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2021, v. 17, p. 1, doi. 10.1002/alz.055199
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- Publication type:
- Article
How knowledge of elevated amyloid impacts neuropsychological performance in cognitively normal older adults: Findings from the REVEAL SCAN Study.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2021, v. 17, p. 1, doi. 10.1002/alz.057834
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- Publication type:
- Article
Measuring sex and gender in U.S. Alzheimer's disease and related dementias (ADRD) research.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2021, v. 17, n. 3, p. 1, doi. 10.1002/alz.055012
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- Publication type:
- Article
Preliminary results from the Partner Availability Limitations Study (PALS): Clinical trial design and implementation.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2020, v. 16, n. 11, p. 1, doi. 10.1002/alz.041472
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- Publication type:
- Article
P4‐200: EFFECTS OF ADVANCES IN BIOMARKER‐BASED DIAGNOSIS AND DISEASE‐MODIFYING TREATMENT ON ALZHEIMER'S DISEASE STIGMA.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2019, v. 15, p. P1353, doi. 10.1016/j.jalz.2019.06.3862
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- Publication type:
- Article
P2‐042: DECIDING TO PARTICIPATE IN AN ALZHEIMER'S DISEASE SECONDARY PREVENTION TRIAL: THE PARTICIPANT PERSPECTIVE.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2019, v. 15, p. P587, doi. 10.1016/j.jalz.2019.06.1264
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- Publication type:
- Article
O2‐06‐05: PRELIMINARY RESULTS FROM THE STUDY OF KNOWLEDGE AND REACTIONS TO APOE TESTING (SOKRATES 2).
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2019, v. 15, p. P550, doi. 10.1016/j.jalz.2019.06.4486
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- Publication type:
- Article
P1‐669: AWARENESS OF MILD COGNITIVE IMPAIRMENT AND MILD ALZHEIMER'S DISEASE DEMENTIA DIAGNOSES IS ASSOCIATED WITH DECREASED SELF‐RATINGS OF QUALITY OF LIFE IN OLDER ADULTS.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2018, v. 14, p. P599, doi. 10.1016/j.jalz.2018.06.681
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- Publication type:
- Article
O2‐06‐06: HOW DOES AN AMYLOID PET SCAN RESULT DIFFER FROM OTHER MEDICAL RESULTS?
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2018, v. 14, p. P634, doi. 10.1016/j.jalz.2018.06.2674
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- Publication type:
- Article
Response to "Avoiding Methodological Bias in Studies of Amyloid Imaging Results Disclosure".
- Published in:
- 2019
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- Publication type:
- Letter
Reactions to learning a "not elevated" amyloid PET result in a preclinical Alzheimer's disease trial.
- Published in:
- Alzheimer's Research & Therapy, 2018, v. 10, n. 1, p. N.PAG, doi. 10.1186/s13195-018-0452-1
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- Publication type:
- Article
IDENTIFIABLE CHARACTERISTICS AND POTENTIALLY MALLEABLE BELIEFS PREDICT STIGMATIZING REACTIONS TOWARDS PERSONS WITH ALZHEIMER'S DISEASE.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2016, v. 12, p. P996, doi. 10.1016/j.jalz.2016.06.2050
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- Publication type:
- Article
Using the capacity assessment tool for genetic testing (CAT-GT) to assess the ability of persons with MCI to decide about ApoE testing: The reveal study.
- Published in:
- Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 2015, v. 11, n. 7, p. P395, doi. 10.1016/j.jalz.2015.06.337
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- Publication type:
- Article
Disclosure of APOE genotype to persons with mild cognitive impairment (MCI)
- Published in:
- 2012
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- Publication type:
- Abstract
Development of a genetic education and genetic risk disclosure protocol for individuals with mild cognitive impairment
- Published in:
- 2011
- By:
- Publication type:
- Abstract
Caregiver Accounts of Lucid Episodes in Persons With Advanced Dementia.
- Published in:
- Gerontologist, 2024, v. 64, n. 6, p. 1, doi. 10.1093/geront/gnad170
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- Publication type:
- Article
Double-Edged Sword: A Positive Brain Scan Result Heightens Confidence in an Alzheimer's Diagnosis But Also Leads to Higher Stigma Among Older Adults in a Vignette-Based Experiment.
- Published in:
- Journals of Gerontology Series B: Psychological Sciences & Social Sciences, 2024, v. 79, n. 8, p. 1, doi. 10.1093/geronb/gbae109
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- Publication type:
- Article
Gender of Study Partners and Research Participants Associated With Differences in Study Partner Ratings of Cognition and Activity Level.
- Published in:
- Journals of Gerontology Series B: Psychological Sciences & Social Sciences, 2023, v. 78, n. 8, p. 1318, doi. 10.1093/geronb/gbad026
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- Publication type:
- Article
Measuring Sex and Gender in Aging and Alzheimer's Research: Results of a National Survey.
- Published in:
- Journals of Gerontology Series B: Psychological Sciences & Social Sciences, 2022, v. 77, n. 6, p. 1005, doi. 10.1093/geronb/gbab226
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- Publication type:
- Article
Awareness of Mild Cognitive Impairment and Mild Alzheimer's Disease Dementia Diagnoses Associated With Lower Self-Ratings of Quality of Life in Older Adults.
- Published in:
- Journals of Gerontology Series B: Psychological Sciences & Social Sciences, 2017, v. 72, n. 6, p. 974, doi. 10.1093/geronb/gbx100
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- Publication type:
- Article
Attitudes Toward Physician-Assisted Death From Individuals Who Learn They Have an Alzheimer Disease Biomarker.
- Published in:
- JAMA Neurology, 2019, v. 76, n. 7, p. 864, doi. 10.1001/jamaneurol.2019.0797
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- Publication type:
- Article
Comprehension of an Elevated Amyloid Positron Emission Tomography Biomarker Result by Cognitively Normal Older Adults.
- Published in:
- JAMA Neurology, 2018, v. 75, n. 1, p. 44, doi. 10.1001/jamaneurol.2017.2954
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- Publication type:
- Article
Cognitively unimpaired adults' reactions to disclosure of amyloid PET scan results.
- Published in:
- PLoS ONE, 2020, v. 15, n. 2, p. 1, doi. 10.1371/journal.pone.0229137
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- Publication type:
- Article
"A Raw Blessing" – Caregivers' Experiences Providing Care to Persons Living with Dementia in the COVID-19 Pandemic.
- Published in:
- Journal of Law, Medicine & Ethics, 2023, v. 51, n. 3, p. 626, doi. 10.1017/jme.2023.99
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- Publication type:
- Article
Development of a process to disclose amyloid imaging results to cognitively normal older adult research participants.
- Published in:
- Alzheimer's Research & Therapy, 2015, v. 7, n. 1, p. 1, doi. 10.1186/s13195-015-0112-7
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- Publication type:
- Article
Determinants of Plasma Alzheimer's Disease Biomarker Use by Primary Care Providers and Dementia Specialists.
- Published in:
- JGIM: Journal of General Internal Medicine, 2024, v. 39, n. 9, p. 1713, doi. 10.1007/s11606-023-08583-9
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- Publication type:
- Article
A Mixed-Methods Randomized Controlled Trial of Financial Incentives and Peer Networks to Promote Walking Among Older Adults.
- Published in:
- 2014
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- Publication type:
- Journal Article
Disclosing genetic risk for Alzheimer's dementia to individuals with mild cognitive impairment.
- Published in:
- Alzheimer's & Dementia: Translational Research & Clinical Interventions, 2020, v. 6, n. 1, p. 1, doi. 10.1002/trc2.12002
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- Publication type:
- Article
A systematic review of measures of gender and biological sex: Exploring candidates for Alzheimer's disease and related dementias (AD/ADRD) research.
- Published in:
- Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring, 2023, v. 15, n. 1, p. 1, doi. 10.1002/dad2.12359
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- Publication type:
- Article
Family members' perspectives on learning cognitively unimpaired older adults' amyloid‐β PET scan results.
- Published in:
- Journal of the American Geriatrics Society, 2021, v. 69, n. 11, p. 3203, doi. 10.1111/jgs.17362
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- Publication type:
- Article
Ethical and Regulatory Issues for Embedded Pragmatic Trials Involving People Living with Dementia.
- Published in:
- Journal of the American Geriatrics Society, 2020, v. 68, p. S37, doi. 10.1111/jgs.16620
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- Publication type:
- Article
“A Raw Blessing” – Caregivers’ Experiences Providing Care to Persons Living with Dementia in the COVID-19 Pandemic.
- Published in:
- Traditio: Studies in Ancient & Medieval History Thought & Religion, 2023, v. 78, p. 626, doi. 10.1017/jme.2023.99
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- Publication type:
- Article