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- Title
ملاحظات اخلاقی آزمایشهای ژنتیکی در نوزادان و کودکان
- Authors
کرانی, شهلا; عزیزی, فریدون; کرانی, میترا
- Abstract
Background and Aim: Recent advances in genetics and molecular technologies have raised some complex ethical questions and challenges. This study aimed to review the ethical considerations related to genetic testing in infants and children. Materials and Methods: In this review article, the keywords "genetic testing" AND "infants" OR "children" AND "ethical considerations" OR "neonatal screening" AND "ethics" were searched in PubMed, SID and Google Scholar databases and the relevant literature was determined and analyzed. Ethical Considerations: Measures were taken to ensure honesty in reporting and citing the texts. Findings: While introducing ethics does not always give definitive answers to the difficult questions of biomedicine, such rules can be helpful in providing some tips for correct decision-making. The most important ethical issues identified in this study included individual autonomy, consent, disclosure of information, confidentiality and privacy as well as justice. Conclusion: Since genetic testing has increasingly become possible for children and adolescents, it is recommended that ethical codes for genetic testing in children and adolescents be developed and their proper implementation be monitored so as to prevent any unethical abuse of such tests.
- Publication
Quarterly Journal of Medical Ethics, 2017, Vol 11, Issue 38, p69
- ISSN
2008-6180
- Publication type
Article