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- Title
Physicians' Perspectives on HL7 Information Policy Sensitive Value Set: A Validation Study through Health Concept Categorization.
- Authors
Eluru, Maheswari; Mendoza, Daniel Hector; Wong, Audrey; Jafari, Mohammad; Todd, Michael; Bayless, Patricia; Chern, Darwyn; Eldredge, Christina; Fonseca, Rodrigo; Franco-Fuquen, Pedro; Garcia-Robledo, Juan Esteban; Gifford, Benjamin Grant; Hans, Rhea; Moreno-Cortes, Eider Felipe; Perumbeti, Ajay; Vargas-Cely, Fabio Samir; Zhao, Lin; Grando, Maria Adela
- Abstract
The Health Level 7 (HL7) organization introduced the Information Sensitivity Policy Value Set with 45 sensitive data categories to facilitate the implementation of granular electronic consent technology. The goal is to allow patients to have control over the sharing of their sensitive medical records. This study represents the first attempt to explore physicians' viewpoints on these categories. Twelve physicians participated in a survey, leading to revisions in 21 HL7 categories. They later classified 600 clinical data items through a second survey using the updated categories. Participants' perspectives were documented, and data analysis included descriptive measures and heat maps. In the first survey, six participants suggested adding 19 new categories (e.g., personality disorder), and modifying 25 category definitions. Two new categories and sixteen revised category definitions were incorporated to support more patient-friendly content and inclusive language. Fifteen new category recommendations were addressed through a revision of category definitions (e.g., personality disorder described as a behavioral health condition). In the second survey, data categorizations led to recommendations for more categories from ten participants. Future revisions of the HL7 categories should incorporate physicians' viewpoints, validate the categories using patient data or/and include patients' perspectives, and develop patient-centric category specifications.
- Subjects
PRIVACY; PERSONALITY disorders; HEALTH facilities; ELECTRONIC data interchange; RESEARCH methodology; PHYSICIANS' attitudes; DATA security; MEDICAL ethics; QUESTIONNAIRES; RESEARCH funding; DESCRIPTIVE statistics; DATA transmission systems; POLICY sciences
- Publication
Healthcare (2227-9032), 2023, Vol 11, Issue 21, p2845
- ISSN
2227-9032
- Publication type
Article
- DOI
10.3390/healthcare11212845