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- Title
A systematic review of parent report measures assessing the psychosocial impact of food allergy on patients and families.
- Authors
Proctor, Kaitlin B.; Tison, Katherine; H. Estrem, Hayley; Park, Jinhee; Scahill, Lawrence; Vickery, Brian P.; Sharp, William G.
- Abstract
Background: Reducing the psychosocial impact of food allergy (FA) represents a top patient‐centered research priority. This priority recognizes that psychosocial impact is an important outcome of current FA therapies (eg, oral immunotherapy), as well as interventions aimed at improving overall quality of life and illness adaptation. Reliable and valid measurement is a necessary prerequisite to developing and evaluating current and emerging FA therapies and potential changes in psychosocial impact. Methods: In this systematic review, we applied the Preferred Reporting Items for Systematic Reviews and Meta‐Analyses (PRISMA) statement to evaluate available parent report measures assessing the psychosocial impact of pediatric IgE‐mediated FA. Results: The systematic search yielded 64 articles involving 13 unique measures. Measures were evaluated through the lens of the Patient Reported Outcomes Measurement Information System (PROMIS) guidelines. Findings indicated that available measures show some evidence of reliability and validity; however, none completely adhere to PROMIS guidelines for measure development. Conclusion: Results highlight a continued need to dedicate research to develop a measurement approach that assesses the full range of psychosocial impact that parents and families may experience as a result of FA, as well as serve as a research outcome as the field continues to develop effective treatments, including immunotherapy.
- Subjects
PATIENTS' families; FOOD allergy; PATIENT-family relations; INFORMATION measurement; QUALITY of life
- Publication
Allergy, 2022, Vol 77, Issue 5, p1347
- ISSN
0105-4538
- Publication type
Article
- DOI
10.1111/all.15140