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- Title
Genomic Databases and Biobanks in Israel.
- Authors
Siegal, Gil
- Abstract
Large-scale biobanks represents an important scientific and medical as well as a commercial opportunity. However, realizing these and other prospects requires social, legal, and regulatory conducive climate, as well as a capable scientific community and adequate infrastructure. Israel has been grappling with the appropriate approach to establishing such a repository, and debates over the governance, structure, finance, and mode of operation shed a bright light on the underlying social norms, civic engagement and scientific clout in steering a governmental response to pressing medical needs. The article presents the backdrop of the Israeli scene, and explores the reasons and forces at work behind the current formulation of the Israeli National Biobank, MIDGAM.
- Subjects
ISRAEL; GENETIC databases; BIOBANKS -- Law &; legislation; SOCIAL norms; LAW; TISSUE banks -- Law &; legislation; GENOMICS; MEDICAL research; BIOETHICS; DATABASES; INFORMED consent (Medical law); INTERPROFESSIONAL relations; MEDICAL ethics; PRIVACY; STEM cells
- Publication
Journal of Law, Medicine & Ethics, 2015, Vol 43, Issue 4, p766
- ISSN
1073-1105
- Publication type
Article
- DOI
10.1111/jlme.12318