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- Title
"Into the Lion's Den": COVID-19 Experiences of Black Adults with Sickle Cell Disease.
- Authors
Matthie, Nadine S.; Clayton-Jones, Dora L.; Jenerette, Coretta M.
- Abstract
Adults living with sickle cell disease are at risk for experiencing severe illness from coronavirus disease 2019 (COVID-19) due to the complexity of their disease. Additionally, self-management and navigating the healthcare system may be challenging during the COVID-19 pandemic. Therefore, we conducted telephone interviews with 25 participants to explore the experiences of Black adults living with sickle cell disease during the early months of the pandemic in the United States. Three overarching themes characterize their experiences: management of sickle cell disease was further complicated by the pandemic, fear of the virus contributed to physical and social isolation, and employment and financial challenges affected well-being. The pandemic contributed to changes in health care maintenance and had a disproportionate impact on this population. Addressing social and structural determinants of health and disruptions in health care accessibility is critical to advancing health and health care equity for individuals living with sickle cell disease.
- Subjects
UNITED States; SICKLE cell anemia treatment; CHRONIC pain treatment; CHRONIC pain &; psychology; PSYCHOLOGY of Black people; COVID-19; SOCIAL determinants of health; HEALTH services accessibility; TELEPHONES; RESEARCH methodology; CROSS-sectional method; FEAR; INTERVIEWING; PATIENTS' attitudes; SEVERITY of illness index; SOCIAL isolation; EMPLOYMENT; HEALTH; THEORY; RESEARCH funding; FINANCIAL management; EMOTIONS; JUDGMENT sampling; DATA analysis software; COVID-19 pandemic; SICKLE cell anemia; PAIN management; ADULTS
- Publication
Qualitative Health Research, 2022, Vol 32, Issue 8/9, p1328
- ISSN
1049-7323
- Publication type
Article
- DOI
10.1177/10497323221094143