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- Title
GINA at Ten and the Future of Genetic Nondiscrimination Law.
- Authors
Rothstein, Mark A.
- Abstract
Abstract: May 21, 2018, marks the tenth anniversary of the signing into law of the Genetic Information Nondiscrimination Act. The Congressional deliberations for GINA were long and difficult. The original bill was introduced in 1995, and for many years, it did not look as if the bill would ever emerge from committee. Several of its provisions raised concerns for insurers, employers, and other stakeholders. After thirteen years, the controversial provisions were either deleted, revised, or clarified. At this ten‐year mark, it is appropriate to take stock of GINA. In light of GINA's glacial legislative history, it is reasonable to start thinking about the necessity, wisdom, and feasibility of amending GINA or enacting new legislation to address unresolved or emerging issues of genetic discrimination and trends in genetics, genomics, precision medicine, and related technologies.
- Subjects
ANTI-discrimination laws; GENEALOGY laws; MEDICAL laws; GENETICS laws; GENETIC techniques; EMPLOYMENT; GENE therapy; GENETIC research; INDUSTRIAL safety; HEALTH insurance; PUBLIC health; REPRODUCTIVE health; GENETIC testing; ACCESSIBLE design; EXTENDED families; AMERICANS with Disabilities Act of 1990; PATIENT Protection &; Affordable Care Act; GENETIC privacy; LAW
- Publication
Hastings Center Report, 2018, Vol 48, Issue 3, p5
- ISSN
0093-0334
- Publication type
Article
- DOI
10.1002/hast.847