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- Title
CHARTING THE PRIVACY LANDSCAPE IN CANADIAN PAEDIATRIC BIOBANKS.
- Authors
Dove, Edward S.; Black, Lee; Avard, Denise; Knoppers, Bartha M.
- Abstract
The article discusses a right to privacy in relation to Canadian paediatric biobanks, and it mentions the legal efforts to control access to and the use of personal information. Privacy legislation and policies are addressed, along with legislative reform and the Supreme Court of Canada's definition of information privacy. Public trust and the legal aspects of third parties are examined, along with the use and transfer of a child's data and the Canadian Charter of Rights and Freedoms.
- Subjects
CANADA; UNITED States; DATA privacy; BIOBANKS -- Law &; legislation; RIGHT of privacy; PEDIATRICS -- Law &; legislation; PERSONALLY identifiable information -- Law &; legislation; CANADA. Supreme Court; LEGISLATIVE reform; CANADA. Canadian Charter of Rights &; Freedoms; LAW; CONFIDENTIAL communications; GENETIC research &; ethics; INFORMED consent &; ethics; TISSUE banks; MEDICAL research ethics; MEDICAL ethics laws; TISSUE banks -- Law &; legislation; ACCESS to information laws; CLINICAL medicine research; MEDICAL ethics; PRIVACY; COURTS; DECISION making; HUMAN genome; LEGAL liability; INFORMED consent (Medical law); PATIENT-family relations; HEALTH policy; PARENTS; RESEARCH ethics; TISSUES; GOVERNMENT regulation; RESEARCH personnel; HUMAN research subjects; GENETIC privacy; CHILDREN; ETHICS
- Publication
Health Law Journal, 2013, Vol 20, p1
- ISSN
1192-8336
- Publication type
Article