We found a match
Your institution may have access to this item. Find your institution then sign in to continue.
- Title
Haemangioma Family Burden: Creation of a Specific Questionnaire.
- Authors
BOCCARA, Olivia; MÉNI, Cecile; LÉAUTÉ-LABREZE, Christine; BODEMER, Christine; VOISARD, Jean-Jacques; DUFRESNE, Hélène; BRAUCHOUX, Sébastien; TAIEB, Charles
- Abstract
To develop and validate a specific questionnaire to assess burden on families of children with infantile haemangioma (IH): the Haemangioma Family Burden questionnaire (HFB). Items were generated from a literature review and a verbatim report from parents. Subsequently, a study was implemented at the Necker Hospital and the Pellegrin Children's Hospital for psychometric analysis. The HFB was refined via item reduction according to inter-question correlations, consensus among experts and exploratory factor analysis. A 20-item questionnaire, grouped into 5 dimensions, was obtained. Construct validity was demonstrated and HFB showed good internal coherence (Cronbach's α: 0.93). The HFB was significantly correlated with the mental dimension of the Short-Form-12 (r = -0.75), and the Psychological General Well-Being Index (r = -0.61). HFB scores differed significantly according to the size and localization of the IH. A validated tool for assessing the burden on families of children with IH is now available.
- Subjects
TUMORS in infants; HEMANGIOMAS; PATIENTS' families; BURDEN of care; PSYCHOMETRICS
- Publication
Acta Dermato-Venereologica, 2015, Vol 95, Issue 1, p78
- ISSN
0001-5555
- Publication type
Article
- DOI
10.2340/00015555-1847