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- Title
Creating Clinical Cohorts: Challenges Encountered in Two Canadian Provinces.
- Authors
SHOEMAKER, ESTHER S.; BECKER, MARISSA L.; LIDDY, CLARE E.; MCCLARTY, LEIGH M.; ASGHARI, SHABNAM; HURD, JILLIAN; ROURKE, SEAN B.; SHAW, SOURADET Y.; BIBEAU, CHRISTINE; ROSENES, RON; LUNDRIGAN, PHILIP; CROWE, LOIS; IRELAND, LAURIE; LOEPPKY, CARLA; KENDALL, CLAIRE E.
- Abstract
In 2013, the Living with HIV (LHIV) Innovation team established clinical cohorts of people living with HIV in Manitoba and Newfoundland and Labrador, and they linked the data to provincial health administrative databases. Access to these data enabled researchers to conduct studies across provincial borders; contribute to a national dialogue on HIV health system performance; and give recommendations for evidence-based healthcare, health policy and public health. However, research funding is episodic; maintaining cohorts requires stable funding. We support the establishment of a cross-jurisdictional approach to facilitate streamlined data collection and linkage without interruption and to allow for meaningful analysis in order to inform national policies.
- Subjects
CANADA; AGE distribution; DATABASES; ENDOWMENT of research; ETHNIC groups; HEALTH care rationing; HEALTH services accessibility; HIV-positive persons; MEDICAL information storage &; retrieval systems; LONGITUDINAL method; MEDICAL care; MEDICAL ethics; HEALTH policy; PRIVACY; PUBLIC health; SEX distribution; ACCESS to information
- Publication
Healthcare Policy, 2019, Vol 15, Issue 1, p10
- ISSN
1715-6572
- Publication type
Article