We found a match
Your institution may have access to this item. Find your institution then sign in to continue.
- Title
Partnering in Research: A National Research Trial Exemplifying Effective Collaboration With American Indian Nations and the Indian Health Service.
- Authors
Chadwick, Jennifer Q.; Copeland, Kenneth C.; Daniel, Mary R.; Erb-Alvarez, Julie A.; Felton, Beverly A.; Khan, Sohail I.; Saunkeah, Bobby R.; Wharton, David F.; Payan, Marisa L.
- Abstract
Despite the fact that numerous major public health problems have plagued American Indian communities for generations, American Indian participation in health research traditionally has been sporadic in many parts of the United States. In 2002, the University of Oklahoma Health Sciences Center (Oklahoma City, Oklahoma) and 5 Oklahoma American Indian research review boards (Oklahoma City Area Indian Health Service, Absentee Shawnee Tribe, Cherokee Nation, Chickasaw Nation, and Choctaw Nation) agreed to participate collectively in a national research trial, the Treatment Options for Type 2 Diabetes in Adolescence and Youth (TODAY) Study. During that process, numerous lessons were learned and processes developed that strengthened the partnerships and facilitated the research. Formal Memoranda of Agreement addressed issues related to community collaboration, venue, tribal authority, preferential hiring of American Indians, and indemnification. The agreements aided in uniting sovereign nations, the Indian Health Service, academics, and public health officials to conduct responsible and ethical research. For more than 10 years, this unique partnership has functioned effectively in recruiting and retaining American Indian participants, respecting cultural differences, and maintaining tribal autonomy through prereview of all study publications and local institutional review board review of all processes. The lessons learned may be of value to investigators conducting future research with American Indian communities.
- Subjects
OKLAHOMA; TYPE 2 diabetes treatment; INTERPROFESSIONAL relations; HUMAN research subjects; PATIENT selection; EPIDEMIOLOGY research methodology; NATIVE Americans; AUTHORITY; AUTHORSHIP; AUTONOMY (Psychology); CONTRACTS; EMPLOYEE recruitment; LEGAL liability; PUBLIC relations; PUBLISHING; RESEARCH ethics; PATIENT participation; MEDICAL care of indigenous peoples; INSTITUTIONAL review boards; CULTURAL awareness; ADOLESCENCE; ETHICS; HISTORY
- Publication
American Journal of Epidemiology, 2014, Vol 180, Issue 12, p1202
- ISSN
0002-9262
- Publication type
Article
- DOI
10.1093/aje/kwu246