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- Title
Women’s experiences of polycystic ovary syndrome diagnosis.
- Authors
Gibson-Helm, Melanie E; Lucas, Isabelle M; Boyle, Jacqueline A; Teede, Helena J
- Abstract
Background. Polycystic ovary syndrome (PCOS) is a common and complex endocrine condition affecting women across the lifespan. Diagnosis experience may impact on physical and emotional well-being and engagement with evidence-based management and treatment. Objective. To explore the perceived experience of PCOS diagnosis, prior to development of an evidence-based guideline for PCOS assessment and management. Methods. Cross-sectional study, involving devised questionnaires completed by a national, community-based sample of 210 women with a previous medical diagnosis of PCOS, aged 18–45 years, in Australia. Main outcome measures included time to diagnosis, number of health professionals seen and information provision. Results. Mean age (± standard deviation) was 31 (±5.8) years and median body mass index (interquartile range) was 30 (12) kg/m2. For 24% of women, PCOS diagnosis took >2 years and 39% saw three or more health professionals before diagnosis was made. The majority (60%) reported they were not given or referred to information sources at time of diagnosis, 20% reported receiving information and 20% were given information but felt it was inadequate. Of those who reported provision of information at diagnosis, 62% felt dissatisfied with or indifferent to information provided about PCOS, 79% reported being provided with information about lifestyle management, 89% reported being provided with information about medical therapy, 83% about long-term complications and 95% about potential infertility. Conclusions. PCOS diagnosis experience can be lengthy, involve many health professionals and leave unmet information needs. The current findings inform the need for evidence-based PCOS resources for women and health professionals.
- Subjects
POLYCYSTIC ovary syndrome; EVIDENCE-based management; HEALTH outcome assessment; MEDICAL personnel; QUESTIONNAIRES; CROSS-sectional method; DIAGNOSIS
- Publication
Family Practice, 2014, Vol 31, Issue 5, p545
- ISSN
0263-2136
- Publication type
Article
- DOI
10.1093/fampra/cmu028