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- Title
End-of-life decisions for people with intellectual disabilities, an interview study with patient representatives.
- Authors
Wagemans, Annemieke MA; Van Schrojenstein Lantman-de Valk, Henny MJ; Proot, Ireen M; Metsemakers, Job; Tuffrey-Wijne, Irene; Curfs, Leopold MG
- Abstract
The article discusses the process of end-of-life decision-making for people with intellectual disabilities. An interview with patient representatives was conducted. It was found that the end-of-life decision making could be improved by responsibilities of patients, doctors or by the support system. It mentions that regular discussion between everyone involved including people with intellectual disabilities themselves could improve knowledge about each other's motives for end-of-decision.
- Subjects
NETHERLANDS; DECISION making; GROUNDED theory; INTERVIEWING; RESEARCH methodology; PEOPLE with intellectual disabilities; PALLIATIVE treatment; PATIENTS; QUALITY of life; RESEARCH funding; QUALITATIVE research
- Publication
Palliative Medicine, 2013, Vol 27, Issue 8, p765
- ISSN
0269-2163
- Publication type
Article
- DOI
10.1177/0269216312468932