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- Title
Transgender and nonbinary individuals and ICT-driven information practices in response to transexclusionary healthcare systems: a qualitative study.
- Authors
Wagner, Travis L; Kitzie, Vanessa L; Lookingbill, Valerie
- Abstract
<bold>Objective: </bold>This qualitative research examines how transgender and gender nonbinary (T/GNB) persons from South Carolina navigate informational barriers within healthcare systems. This navigation can be described through the lens of information practices, or how T/GNB participants create, seek, use, and share information to achieve desired healthcare outcomes. Special focus is given to the roles of Information and Communication Technologies (ICTs) in shaping these practices.<bold>Materials and Methods: </bold>The research utilizes participant data from semistructured interviews and focus groups conducted with 26 T/GNB individuals focusing on their health information practices. Data analysis utilized emic/etic coding and the constant comparative method to identify themes describing transexclusionary information barriers and respondent ICT-led information practices.<bold>Results: </bold>Findings note healthcare systems producing cisnormativity by design resulting in T/GNB individuals viewing healthcare spaces as exclusionary. Exclusionary barriers included over reliance on medical, expert authority ignoring T/GNB embodiment, and a lack of contextual perspective to identities. In response, T/GNB seek, create, use, and share information via ICTs to challenge exclusionary practices.<bold>Discussion: </bold>T/GNB ICT use addresses systemic barriers within healthcare systems suggesting a need to reframe healthcare systems through the lens of design justice, one that values T/GNB agency in understanding and producing health knowledge.<bold>Conclusion: </bold>While many healthcare providers are not intentionally being transexclusionary, the design of healthcare information systems rely on cisnormative values, thus excluding many T/GNB from accessing healthcare in comfortable and safe ways. Shifting toward the values and practices of T/GNB as informed by ICT use will afford healthcare providers ways to undo barriers to care.
- Subjects
SOUTH Carolina; NONBINARY people; TRANSGENDER people; MEDICAL personnel; QUALITATIVE research; MEDICAL care cost statistics; INFORMATION &; communication technologies; THEMATIC analysis; RESEARCH; FOCUS groups; RESEARCH methodology; MEDICAL care; EVALUATION research; GENDER identity; COMPARATIVE studies; RESEARCH funding
- Publication
Journal of the American Medical Informatics Association, 2022, Vol 29, Issue 2, p239
- ISSN
1067-5027
- Publication type
journal article
- DOI
10.1093/jamia/ocab234