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- Title
Emotional impact of a paediatric exon-skipping therapy trial.
- Authors
Garralda, Maria Elena; Kinali, Maria; Cirak, Sebahattin; Bushby, Kate; Guglieri, Michela; Straub, Volker; Muntoni, Francesco
- Abstract
The article presents a study that deals with the presence of emotional reactions subsequent to therapeutic interventions on children with Duchenne muscular dystrophy. It explores therapeutic misconceptions prior to the trial and subjective impact following it in children with DMD. It examines the link between family psychosocial stress at trial entry and emotional trial impact.
- Subjects
EMOTIONAL conditioning; DUCHENNE muscular dystrophy; NEUROMUSCULAR diseases in children; PSYCHOSOCIAL factors; FAMILIES
- Publication
Developmental Medicine & Child Neurology, 2011, Vol 53, Issue 12, p1157
- ISSN
0012-1622
- Publication type
Article
- DOI
10.1111/j.1469-8749.2011.04128.x