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- Title
Underutilization of Genetics Services for Autism: The Importance of Parental Awareness and Provider Recommendation.
- Authors
Vande Wydeven, Kimberly; Kwan, Andrea; Hardan, Antonio; Bernstein, Jonathan
- Abstract
Reasons for the underutilization of genetics services by families of children with autism spectrum disorders (ASD) are not well understood. We report the identification of factors associated with this underuse. Survey-based study of parents and/or guardians of children with ASD. One hundred fifty-five families completed the questionnaire. Thirty-one of 155 (20%) children had seen a genetics professional. Forty-nine of 154 (32%) children had undergone genetic testing. Parents whose child saw a genetics professional were more likely to 1) Have a primary provider refer for or suggest a genetics evaluation 2) Have asked for a referral, and/or 3) Know another person with a genetic cause of ASD. amilies of children with ASD who have not received genetics services are less aware of their availability and utility. They are also less likely to have their provider recommend a clinical genetics evaluation. Efforts should be taken to increase awareness of both health providers and parents regarding the usefulness of genetics services for ASD.
- Subjects
UNITED States; AUTISM; CHI-squared test; EMOTIONS; GENETIC counseling; MEDICAL care use; PARENTS of children with disabilities; PHYSICIANS; QUESTIONNAIRES; RESEARCH funding; STATISTICS; GENETIC testing; PHYSICIAN practice patterns; DATA analysis; OCCUPATIONAL roles; SOCIOECONOMIC factors; PARENT attitudes; DATA analysis software; DESCRIPTIVE statistics
- Publication
Journal of Genetic Counseling, 2012, Vol 21, Issue 6, p803
- ISSN
1059-7700
- Publication type
Article
- DOI
10.1007/s10897-012-9494-x