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- Title
"Small Wins" for those with Lyme Disease in Canada: Patients in an Embodied Health Movement.
- Authors
Cox, Marilyn; Levesque, Mario
- Abstract
Simple Summary: Many Lyme disease patients are struggling to navigate a healthcare system that increasingly dismisses their condition. Patient organizations have arisen to contest a healthcare system that dismisses patient conditions and to help bridge the divide between patients, researchers, healthcare systems, and policymakers. This study documents this experience to reveal the marginal progress made to date and the complexity of the challenges that remain. Lyme disease patient organizations have formed to challenge a health system that is failing Canadians who suffer from a disease that is ambiguous in its symptomology and trajectory. The framework of an embodied health movement illustrates the importance of the illness experience in mobilizing patients to oppose a system that is reliant on restrictive guidelines that deny testing and treatment and to seek alliances with researchers, physicians, and politicians who are sympathetic to their goals. The strategies of Lyme disease patient organizations, the importance of experiential knowledge, and the roles of both adversaries and allies are examined through a "small wins" approach to gauge successes and setbacks within a Canadian context.
- Subjects
CANADA; LYME disease treatment; PATIENTS' associations; PHYSICIANS' attitudes; MEDICAL care
- Publication
Zoonotic Diseases (2813-0227), 2024, Vol 4, Issue 1, p22
- ISSN
2813-0227
- Publication type
Article
- DOI
10.3390/zoonoticdis4010004