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- Title
Mental health professionals' perceptions on patients control of data sharing.
- Authors
Ivanova, Julia; Grando, Adela; Murcko, Anita; Saks, Michael; Whitfield, Mary Jo; Dye, Christy; Chern, Darwyn
- Abstract
Integrated mental and physical care environments require data sharing, but little is known about health professionals' perceptions of patient-controlled health data sharing. We describe mental health professionals' views on patient-controlled data sharing using semi-structured interviews and a mixed-method analysis with thematic coding. Health information rights, specifically those of patients and health care professionals, emerged as a key theme. Behavioral health professionals identified patient motivations for non-sharing sensitive mental health records relating to substance use, emergency treatment, and serious mental illness (94%). We explore conflicts between professional need for timely access to health information and patient desire to withhold some data categories. Health professionals' views on data sharing are integral to the redesign of health data sharing and informed consent. As well, they seek clarity about the impact of patient-controlled sharing on health professionals' roles and scope of practice.
- Subjects
ATTITUDE (Psychology); ELECTRONIC data interchange; INFORMED consent (Medical law); INTEGRATED health care delivery; INTERVIEWING; RESEARCH methodology; MEDICAL quality control; MEDICAL ethics; MEDICAL personnel; MEDICAL practice; MENTAL health services; MOTIVATION (Psychology); PHYSICIAN-patient relations; PRIVACY; EMERGENCY services in psychiatric hospitals; PSYCHOTHERAPY patients; SUBSTANCE abuse; PATIENTS' rights; PSYCHOSOCIAL factors; ACCESS to information; THEMATIC analysis; ELECTRONIC health records; PHYSICIANS' attitudes
- Publication
Health Informatics Journal, 2020, Vol 26, Issue 3, p2011
- ISSN
1460-4582
- Publication type
Article
- DOI
10.1177/1460458219893845