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- Title
Quality of life of family caregivers of people with Down Syndrome.
- Authors
Moreira, Ramon Missias; de Oliveira, Bruno Gonçalves; Cruz, Diego Pires; Bomfim, Eliane dos Santos; de Camargo, Climene Laura; Sales, Zenilda Nogueira
- Abstract
Objective: to analyze the perception of parents/caregivers of people with Down syndrome on quality of life. Methods: It is a qualitative study, which used for data collection semi-structured interviews with 10 caregiver parents of people with Down syndrome. To analyze the data, we used the content analysis technique. Results: It was observed that caregivers are mothers over the age of 30, who declared themselves as racially mixed (Pardo in Portuguese), live with a partner, practice some type of physical activity and attend any educational institution. Moreover, they had as main occupation the caregiver role. Caregivers reported that access to leisure; health; family relationships; general welfare; Material and rights were the factors that influence the quality of life. Conclusion: it was concluded that caregiver parents of people with Down syndrome had different views on the quality of life.
- Subjects
PORTUGAL; DOWN syndrome; PSYCHOLOGY of caregivers; CONTENT analysis; INTERVIEWING; RESEARCH methodology; QUALITY of life; RACE relations; QUALITATIVE research; PHYSICAL activity; GENETICS
- Publication
Revista de Pesquisa: Cuidado é Fundamental, 2016, Vol 8, Issue 3, p4826
- ISSN
1809-6107
- Publication type
Article
- DOI
10.9789/2175-5361.2016.v8i3.4826-4832