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- Title
Engaging Patients and Caregivers to Design Transitional Care Management Services at a Minority Serving Institution.
- Authors
Ursan, Iulia D.; Krishnan, Jerry A.; Pickard, A. Simon; Calhoun, Elizabeth; DiDomenico, Robert; Prieto-Centurion, Valentin; Sullivan, Jamie B.; Valentino, Lauren; Williams, Mark V.; Min Joo
- Abstract
Limited socioeconomic resources contribute to high readmission rates at minority serving institutions (MSIs). A better understanding of patient- level factors and need for patient navigators could inform approaches to enhance care transitions tailored to these vulnerable patient populations. We sought to understand the perspectives of patients and their caregivers about hospital to home transitions from an MSI, as well as their attitudes about patient navigators to facilitate care transitions. We conducted qualitative research using focus groups (FGs)—five disease- specific patient FGs and two caregiver FGs, including 23 patients and 10 caregivers. Findings support the need for additional services to address: (1) gaps in the hospital discharge; (2) socioeconomic resources; (3) access to post- discharge care; (4) patient's health care seeking behaviors; (5) patient anxiety; (6) self- management education; and (7) social supports for patients and caregivers. While caregivers uniformly expressed interest in patient navigators, support for navigators among patients was more variable.
- Subjects
ILLINOIS; CAREGIVERS; CONTINUUM of care; FOCUS groups; HEALTH services accessibility; PATIENT aftercare; INTERVIEWING; MINORITIES; RESEARCH funding; PATIENT participation; QUALITATIVE research; SOCIAL support; SOCIOECONOMIC factors; DISCHARGE planning; PATIENT-centered care; PATIENT readmissions; DATA analysis software; SAFETY-net health care providers
- Publication
Journal of Health Care for the Poor & Underserved, 2016, Vol 27, Issue 1, p352
- ISSN
1049-2089
- Publication type
Article
- DOI
10.1353/hpu.2016.0026