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- Title
Building Families' Capacities: Community Forums with Parents and Occupational Therapists.
- Authors
Grandisson, Marie; Martin-Roy, Sarah; Marcotte, Justine; Milot, Élise; Girard, Rébecca; Jasmin, Emmanuelle; Fauteux, Cynthia; Bergeron, Julie
- Abstract
Background. Parents of a child considered to have special needs are at greater risk of stress and exhaustion. Although many occupational therapy interventions can help these children, they often require significant time and energy from families. Purpose. To document the perspectives of parents and occupational therapists regarding ways to offer services that help build families' capacities without overloading them. Method. A qualitative descriptive design guided online community forums with 41 parents and occupational therapists in Quebec, Canada. Findings. Nine key principles to build the capacities of families without overburdening them were identified. These include being sensitive to possible negative impacts of services, avoiding overwhelming the family with information or recommendations, taking the needed time, highlighting the positive, and offering flexible conditions for services. Implications. Our findings help identify how capacity-building rehabilitation services can be offered to families to optimize positive outcomes and minimize harms.
- Subjects
QUEBEC (Province); PARENT attitudes; TELEREHABILITATION; OCCUPATIONAL therapy for children; HEALTH services accessibility; PARENTS of children with disabilities; ATTITUDES of medical personnel; RESEARCH methodology; FAMILY support; PHYSICIAN-patient relations; CHILDREN with disabilities; BURDEN of care; MEDICAL personnel; VIDEOCONFERENCING; MEDICAL care costs; FAMILY-centered care; PATIENTS' families; QUALITATIVE research; PRE-tests &; post-tests; REINFORCEMENT (Psychology); PSYCHOSOCIAL factors; RESEARCH funding; DESCRIPTIVE statistics; INTERPROFESSIONAL relations; REHABILITATION of children with disabilities; SUPPORT groups; ONLINE social networks; CONTENT analysis; DATA analysis software; FAMILY relations; STATISTICAL sampling; OCCUPATIONAL therapists
- Publication
Canadian Journal of Occupational Therapy, 2023, Vol 90, Issue 2, p197
- ISSN
0008-4174
- Publication type
Article
- DOI
10.1177/00084174231160972