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- Title
Outcomes for gastrostomy‐fed children and their parents: qualitative findings from the 'Your Tube' study.
- Authors
Maddison, Jane; Taylor, Johanna; O'Neill, Mark; Cade, Janet; Hewitt, Catherine; Horridge, Karen; McCarter, Alison; Fraser, Lorna K; Beresford, Bryony
- Abstract
Abbreviation COS Core outcome set The number of children with complex medical conditions dependent on one or more medical technologies is increasing.1-3 This is because of improvements in the way such conditions are treated and managed, hence extending the lives of these children.4,5 Gastrostomies are one such technology. Parent outcomes Emotional health Difficulties establishing gastrostomy feeding and temporary or longer-lasting issues with gastrointestinal symptoms had negative effects on parents' emotional health (e.g. distress, worry). Gastrointestinal symptoms The unpleasant physical sensations caused by gastrointestinal symptoms and their potential to significantly affect other outcomes meant they were consistently identified as a key outcome by all participants. Relevance of diet to pathophysiological manifestations and life impact outcomes Type of diet (formula vs blended-food) was regarded as relevant to most outcomes identified, particularly gastrointestinal symptoms and physical health status.
- Subjects
FEEDING tubes; PARENTS; CHILDREN with disabilities; OSTOMATES; CAREGIVER attitudes; PARENT attitudes; QUALITY of life; PARENTING
- Publication
Developmental Medicine & Child Neurology, 2021, Vol 63, Issue 9, p1099
- ISSN
0012-1622
- Publication type
Article
- DOI
10.1111/dmcn.14868