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Mortality in adults with sickle cell disease: Results from the sickle cell disease implementation consortium (SCDIC) registry.
Published in:
American Journal of Hematology, 2024, v. 99, n. 5, p. 900, doi. 10.1002/ajh.27279
By:
- Njoku, Franklin;
- Pugh, Norma;
- Brambilla, Donald;
- Kroner, Barbara;
- Shah, Nirmish;
- Treadwell, Marsha;
- Gibson, Robert;
- Hsu, Lewis L.;
- Gordeuk, Victor R.;
- Glassberg, Jeffrey;
- Hankins, Jane S.;
- Kutlar, Abdullah;
- King, Allison A.;
- Kanter, Julie
Publication type:
Article
Pregnancy outcomes with hydroxyurea use in women with sickle cell disease.
Published in:
American Journal of Hematology, 2022, v. 97, n. 5, p. 603, doi. 10.1002/ajh.26495
By:
- Kroner, Barbara L.;
- Hankins, Jane S.;
- Pugh, Norma;
- Kutlar, Abdullah;
- King, Allison A.;
- Shah, Nirmish R.;
- Kanter, Julie;
- Glassberg, Jeffrey;
- Treadwell, Marsha;
- Gordeuk, Victor R.
Publication type:
Article
Patient‐reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium.
Published in:
American Journal of Hematology, 2020, v. 95, n. 9, p. 1066, doi. 10.1002/ajh.25880
By:
- Knisely, Mitchell R.;
- Pugh, Norma;
- Kroner, Barbara;
- Masese, Rita;
- Gordeuk, Victor;
- King, Allison A.;
- Smith, Sharon M.;
- Gurney, James G.;
- Adams, Robert;
- Wun, Ted;
- Snyder, Angela;
- Glassberg, Jeffrey;
- Shah, Nirmish;
- Treadwell, Marsha
Publication type:
Article
Systematic symptom management in the IMPACT Consortium: rationale and design for 3 effectiveness-implementation trials.
Published in:
JNCI Cancer Spectrum, 2023, v. 7, n. 6, p. 1, doi. 10.1093/jncics/pkad073
By:
- Smith, Ashley Wilder;
- DiMartino, Lisa;
- Garcia, Sofia F;
- Mitchell, Sandra A;
- Ruddy, Kathryn J;
- Smith, Justin D;
- Wong, Sandra L;
- Cahue, September;
- Cella, David;
- Jensen, Roxanne E;
- Hassett, Michael J;
- Hodgdon, Christine;
- Kroner, Barbara;
- Osarogiagbon, Raymond U;
- Popovic, Jennifer;
- Richardson, Kimberly;
- Schrag, Deborah;
- Cheville, Andrea L;
- Consortium, IMPACT
Publication type:
Article
CureSCi Metadata Catalog–Making sickle cell studies findable.
Published in:
PLoS ONE, 2022, v. 17, n. 12, p. 1, doi. 10.1371/journal.pone.0256248
By:
- Pan, Huaqin;
- Ives, Cataia;
- Mandal, Meisha;
- Qin, Ying;
- Hendershot, Tabitha;
- Popovic, Jen;
- Brambilla, Donald;
- Stratford, Jeran;
- Treadwell, Marsha;
- Wu, Xin;
- Kroner, Barbara
Publication type:
Article
An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model.
Published in:
Quality of Life Research, 2022, v. 31, n. 9, p. 2681, doi. 10.1007/s11136-022-03132-z
By:
- Treadwell, Marsha J.;
- Mushiana, Swapandeep;
- Badawy, Sherif M.;
- Preiss, Liliana;
- King, Allison A.;
- Kroner, Barbara;
- Chen, Yumei;
- Glassberg, Jeffrey;
- Gordeuk, Victor;
- Shah, Nirmish;
- Snyder, Angela;
- Wun, Theodore
Publication type:
Article
Improvement in Hepatic Fibrosis Biomarkers Associated With Chemokine Receptor Inactivation Through Mutation or Therapeutic Blockade.
Published in:
Clinical Infectious Diseases, 2019, v. 68, n. 11, p. 1911, doi. 10.1093/cid/ciy807
By:
- Sherman, Kenneth E;
- Abdel-Hameed, Enass;
- Rouster, Susan D;
- Shata, Mohamed Tarek M;
- Blackard, Jason T;
- Safaie, Parham;
- Kroner, Barbara;
- Preiss, Liliana;
- Horn, Paul S;
- Kottilil, Shyam
Publication type:
Article
Immunogenetics of factor VIII inhibitor development.
Published in:
2009
By:
- Lozier, Jay;
- Menashe, Idan;
- Kroner, Barbara;
- Goedert, James;
- Rosenberg, Philip
Publication type:
Abstract
Social determinants of health and treatment center affiliation: analysis from the sickle cell disease implementation consortium registry.
Published in:
BMC Health Services Research, 2024, v. 24, n. 1, p. 1, doi. 10.1186/s12913-024-10717-6
By:
- Mendez, Gustavo G.;
- Nocek, Judith M.;
- Brambilla, Donald J.;
- Jacobs, Sara;
- Cole, Oladipo;
- Kanter, Julie;
- Glassberg, Jeffrey;
- Saving, Kay L.;
- Melvin, Cathy L.;
- Gibson, Robert W.;
- Treadwell, Marsha;
- Jackson, George L.;
- King, Allison A.;
- Gordeuk, Victor R.;
- Kroner, Barbara;
- Hsu, Lewis L.
Publication type:
Article
Comparison of the International Immune Tolerance Registry and the North American Immune Tolerance Registry.
Published in:
Vox Sanguinis, 1999, v. 77, p. 33, doi. 10.1111/j.1423-0410.1999.tb00011.x
By:
- Kroner, Barbara L.
Publication type:
Article
Comparison of the International Immune Tolerance Registry and the North American Immune Tolerance Registry.
Published in:
Vox Sanguinis, 1999, v. 77, p. 33, doi. 10.1159/000056713
By:
- Kroner, Barbara L.
Publication type:
Article
Response: Let us not miss the forest for the trees. Reply to "Echocardiography in epilepsy: A tool to be explored".
Published in:
Epilepsia (Series 4), 2021, v. 62, n. 5, p. 1287, doi. 10.1111/epi.16881
By:
- Frank, Lowell H.;
- Schreiber, John M.;
- Kroner, Barbara L.;
- Bumbut, Adrian;
- Ismail, Moussa O.;
- Gaillard, William D.
Publication type:
Article
Children with refractory epilepsy demonstrate alterations in myocardial strain.
Published in:
Epilepsia (Series 4), 2020, v. 61, n. 10, p. 2234, doi. 10.1111/epi.16652
By:
- Schreiber, John M.;
- Frank, Lowell H.;
- Kroner, Barbara L.;
- Bumbut, Adrian;
- Ismail, Moussa O.;
- Gaillard, William D.
Publication type:
Article
Disparities in electronic health record portal access and use among patients with cancer.
Published in:
JNCI: Journal of the National Cancer Institute, 2024, v. 116, n. 3, p. 476, doi. 10.1093/jnci/djad225
By:
- Griffin, Joan M;
- Kroner, Barbara L;
- Wong, Sandra L;
- Preiss, Liliana;
- Smith, Ashley Wilder;
- Cheville, Andrea L;
- Mitchell, Sandra A;
- Lancki, Nicola;
- Hassett, Michael J;
- Schrag, Deborah;
- Osarogiagbon, Raymond U;
- Ridgeway, Jennifer L;
- Cella, David;
- Jensen, Roxanne E;
- Flores, Ann Marie;
- Austin, Jessica D;
- Yanez, Betina
Publication type:
Article
Bicuspid and unicuspid aortic valves: Different phenotypes of the same disease? Insight from the GenTAC Registry.
Published in:
Congenital Heart Disease, 2017, v. 12, n. 6, p. 740, doi. 10.1111/chd.12520
By:
- Krepp, Joseph M.;
- Roman, Mary J.;
- Devereux, Richard B.;
- Bruce, Adrienne;
- Prakash, Siddharth K.;
- Morris, Shaine A.;
- Milewicz, Dianna M.;
- Holmes, Kathryn W.;
- Ravekes, William;
- Shohet, Ralph V.;
- Pyeritz, Reed E.;
- Maslen, Cheryl L.;
- Kroner, Barbara L.;
- Eagle, Kim A.;
- Preiss, Liliana;
- Asch, Federico M.
Publication type:
Article
SCN8A encephalopathy: Research progress and prospects.
Published in:
Epilepsia (Series 4), 2016, v. 57, n. 7, p. 1027, doi. 10.1111/epi.13422
By:
- Meisler, Miriam H.;
- Helman, Guy;
- Hammer, Michael F.;
- Fureman, Brandy E.;
- Gaillard, William D.;
- Goldin, Alan L.;
- Hirose, Shinichi;
- Ishii, Atsushi;
- Kroner, Barbara L.;
- Lossin, Christoph;
- Mefford, Heather C.;
- Parent, Jack M.;
- Patel, Manoj;
- Schreiber, John;
- Stewart, Randall;
- Whittemore, Vicky;
- Wilcox, Karen;
- Wagnon, Jacy L;
- Pearl, Phillip L.;
- Vanderver, Adeline
Publication type:
Article
Characteristics of epilepsy patients and caregivers who either have or have not heard of SUDEP.
Published in:
Epilepsia (Series 4), 2014, v. 55, n. 10, p. 1486, doi. 10.1111/epi.12799
By:
- Kroner, Barbara L.;
- Wright, Cyndi;
- Friedman, Daniel;
- Macher, Kim;
- Preiss, Liliana;
- Misajon, Jade;
- Devinsky, Orrin
Publication type:
Article
Standards for epidemiologic studies and surveillance of epilepsy.
Published in:
Epilepsia (Series 4), 2011, v. 52, p. 2, doi. 10.1111/j.1528-1167.2011.03121.x
By:
- Thurman, David J.;
- Beghi, Ettore;
- Begley, Charles E.;
- Berg, Anne T.;
- Buchhalter, Jeffrey R.;
- Ding, Ding;
- Hesdorffer, Dale C.;
- Hauser, W. Allen;
- Kazis, Lewis;
- Kobau, Rosemarie;
- Kroner, Barbara;
- Labiner, David;
- Liow, Kore;
- Logroscino, Giancarlo;
- Medina, Marco T.;
- Newton, Charles R.;
- Parko, Karen;
- Paschal, Angelia;
- Preux, Pierre-Marie;
- Sander, Josemir W.
Publication type:
Article
GenTAC registry report: Gender differences among individuals with genetically triggered thoracic aortic aneurysm and dissection.
Published in:
American Journal of Medical Genetics. Part A, 2013, v. 161A, n. 4, p. 779, doi. 10.1002/ajmg.a.35836
By:
- Holmes, Kathryn W.;
- Maslen, Cheryl L.;
- Kindem, Mark;
- Kroner, Barbara L.;
- Song, Howard K.;
- Ravekes, William;
- Dietz, H.C.;
- Weinsaft, Jonathan W.;
- Roman, Mary J.;
- Devereux, Richard B.;
- Pyeritz, Reed E.;
- Bavaria, Joseph;
- Milewski, Karianna;
- Milewicz, Dianna;
- LeMaire, Scott A.;
- Hendershot, Tabitha;
- Eagle, Kim A.;
- Tolunay, H. Eser;
- Desvigne‐Nickens, Patrice;
- Silberbach, Michael
Publication type:
Article
New Incidence, Prevalence, and Survival of Aicardi Syndrome From 408 Cases.
Published in:
Journal of Child Neurology, 2008, v. 23, n. 5, p. 531, doi. 10.1177/0883073807309782
By:
- Kroner, Barbara L.;
- Preiss, Liliana R.;
- Ardini, Mary-Anne;
- Gaillard, William D.
Publication type:
Article

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