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- Title
Development of a pseudo/anonymised primary care research database: Proof-of-concept study.
- Authors
MacRury, Sandra; Finlayson, Jim; Hussey-Wilson, Susan; Holden, Samantha
- Abstract
General practice records present a comprehensive source of data that could form a variety of anonymised or pseudonymised research databases to aid identification of potential research participants regardless of location. A proof-of-concept study was undertaken to extract data from general practice systems in 15 practices across the region to form pseudo and anonymised research data sets. Two feasibility studies and a disease surveillance study compared numbers of potential study participants and accuracy of disease prevalence, respectively. There was a marked reduction in screening time and increase in numbers of potential study participants identified with the research repository compared with conventional methods. Accurate disease prevalence was established and enhanced with the addition of selective text mining. This study confirms the potential for development of national anonymised research database from general practice records in addition to improving data collection for local or national audits and epidemiological projects.
- Subjects
UNITED Kingdom; MEDICAL databases; PROOF of concept; DATA security; RESEARCH evaluation; DATABASE design; FAMILY medicine; INFORMATION storage &; retrieval systems; LYME disease; MEDICAL cooperation; PRIMARY health care; PUBLIC health surveillance; RESEARCH; RESEARCH funding; DATA mining; PILOT projects; HUMAN research subjects; PATIENT selection; ELECTRONIC health records
- Publication
Health Informatics Journal, 2016, Vol 22, Issue 2, p113
- ISSN
1460-4582
- Publication type
Article
- DOI
10.1177/1460458214535118