We found a match
Your institution may have access to this item. Find your institution then sign in to continue.
- Title
How parkinsonism influences life: the patients' point of view.
- Authors
Martignoni, E.; Citterio, Antonietta; Zangaglia, R.; Godi, L.; Pacchetti, C.; Fundarò, C.; Corengia, E.; Bono, G.; Nappi, G.
- Abstract
To explore the experience of living with parkinsonism, a survey form was sent to the members of a patients' association; 1,256 forms were analysed. The mean age was 65.75 ± 9.29 years; 64.4% males. A family history was reported by 19.2%. Basic abilities were preserved in 75% of the responders; the ability to do indoor and outdoor activities was preserved in 42 and 28%, respectively. 70% of the responders liked to meet other people and about 50% liked discussing their condition. 80.3% of the responders lived with partner, while 7.8% did not live with family. Of the patients' partners, 38.9% took drugs, and 9.4% themselves needed assistance. Care programmes for parkinsonians should take into account the disease duration, the degree of disability, the presence of caregiver/s, and the level of caregiver burden; but it should also be appreciated that social habits, need of help, and severity of symptoms influence disability.
- Subjects
PARKINSONIAN disorders; DISEASE duration; BURDEN of care; QUALITY of life; NEUROPSYCHIATRY; MEDICAL care; HEALTH surveys
- Publication
Neurological Sciences, 2011, Vol 32, Issue 1, p125
- ISSN
1590-1874
- Publication type
Article
- DOI
10.1007/s10072-010-0435-x