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- Title
Feasibility study of a wellness intervention for caregivers of patients undergoing hematopoietic stem cell transplantation: The Ready to CARE Intervention.
- Authors
Morency, Jamme L; Caldon, Kate L; Root, Lynn; Hayes, Christi A; Brighton, Susan; Lyons, Kathleen Doyle
- Abstract
Introduction: Caregivers of patients undergoing hematopoietic stem cell transplantation need encouragement to maintain their own wellbeing. This feasibility study explored a six-session wellness intervention for caregivers entitled Ready to CARE (Connect, Actively Relax, and Exercise). Method: This study used a single-arm pre–post design to explore the feasibility and acceptability of the intervention and study procedures. The individual, participant-directed intervention was initiated at hospitalization for stem cell reinfusion. Caregivers completed telephone surveys on four occasions and engaged in one semi-structured interview to share their perceptions of the intervention. Results: Twenty participants enrolled and completed the baseline survey, with 50%, 90%, and 80% completing the subsequent three surveys, respectively. Seventy-four percent completed all six sessions of the intervention. Caregivers most often used the sessions to set goals related to physical activity (36%), stress management (14%), sleep (13%), and caregiving tasks (11%). Caregivers reported appreciation of the intervention's focus on supporting caregivers, taking action with goal-setting, and allowing caregivers to determine the focus of the goals. Scheduling the sessions was the most problematic aspect of the intervention. Conclusion: While caregivers were open to a wellness intervention, a high degree of flexibility and tailoring is needed to engage and support busy caregivers. Clinical Trial Registration: NCT03210727
- Subjects
WELL-being; PILOT projects; CAREGIVER attitudes; CLINICAL trials; SOCIAL support; PROBLEM solving; RESEARCH methodology; INTERVIEWING; BURDEN of care; OCCUPATIONAL therapy; PRE-tests &; post-tests; SURVEYS; PHYSICAL activity; SLEEP; SELF-efficacy; PSYCHOLOGY of caregivers; HEALTH; RESEARCH funding; STRESS management; HEMATOPOIETIC stem cell transplantation; PSYCHOLOGICAL adaptation; DATA analysis software; GOAL (Psychology); HEALTH self-care
- Publication
British Journal of Occupational Therapy, 2021, Vol 84, Issue 3, p144
- ISSN
0308-0226
- Publication type
Article
- DOI
10.1177/0308022620950980