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Patients' and parents' views regarding supportive care in childhood cancer.
Published in:
2017
By:
- Tenniglo, L.;
- Loeffen, E.;
- Kremer, L.;
- Font-Gonzalez, A.;
- Mulder, R.;
- Postma, A.;
- Naafs-Wilstra, M.;
- Grootenhuis, M.;
- Wetering, M.;
- Tissing, W.;
- Tenniglo, L J A;
- Loeffen, E A H;
- Kremer, L C M;
- Mulder, R L;
- Naafs-Wilstra, M C;
- Grootenhuis, M A;
- van de Wetering, M D;
- Tissing, W J E
Publication type:
journal article
Efficacy of Op Koers Online, an online group intervention for parents of children with cancer: Results of a randomized controlled trial.
Published in:
Psycho-Oncology, 2024, v. 33, n. 1, p. 1, doi. 10.1002/pon.6284
By:
- Joosten, M. M. H.;
- Maurice‐Stam, H.;
- van Gorp, M.;
- Beek, L. R.;
- Stremler‐van Holten, D.;
- Scholten, L.;
- Grootenhuis, M. A.
Publication type:
Article
Hearing siblings' voices: exploring the (online) support needs of siblings of children with a chronic condition.
Published in:
Journal of Patient-Reported Outcomes, 2019, v. 3, n. 1, p. N.PAG, doi. 10.1186/s41687-019-0102-9
By:
- Joosten, M. M. H.;
- Maurice-Stam, H.;
- Scholten, L.;
- Grootenhuis, M. A.
Publication type:
Article
Digital health tools for pain monitoring in pediatric oncology: a scoping review and qualitative assessment of barriers and facilitators of implementation.
Published in:
Supportive Care in Cancer, 2023, v. 31, n. 3, p. 1, doi. 10.1007/s00520-023-07629-2
By:
- Simon, J. D. H. P.;
- Hooijman, I. S.;
- Van Gorp, M.;
- Schepers, S. A.;
- Michiels, E. M. C.;
- Tissing, W. J. E.;
- Grootenhuis, M. A.
Publication type:
Article
Support needs of Dutch young adult childhood cancer survivors.
Published in:
Supportive Care in Cancer, 2022, v. 30, n. 4, p. 3291, doi. 10.1007/s00520-021-06723-7
By:
- van Erp, L. M. E.;
- Maurice-Stam, H.;
- Kremer, L. C. M.;
- Tissing, W. J. E.;
- van der Pal, H. J. H.;
- Beek, L.;
- de Vries, A. C. H.;
- van den Heuvel-Eibrink, M. M.;
- Versluys, B. A. B.;
- van der Heiden-van der Loo, M.;
- van Gorp, M.;
- Huizinga, G. A.;
- Grootenhuis, M. A.
Publication type:
Article
A vulnerable age group: the impact of cancer on the psychosocial well-being of young adult childhood cancer survivors.
Published in:
Supportive Care in Cancer, 2021, v. 29, n. 8, p. 4751, doi. 10.1007/s00520-021-06009-y
By:
- van Erp, L. M. E.;
- Maurice-Stam, H.;
- Kremer, L. C. M.;
- Tissing, W. J. E.;
- van der Pal, H. J. H.;
- de Vries, A. C. H.;
- van den Heuvel-Eibrink, M. M.;
- Versluys, B. A. B.;
- van der Heiden-van der Loo, M.;
- Huizinga, G. A.;
- Grootenhuis, M. A.
Publication type:
Article
The impact of maintenance therapy on sleep-wake rhythms and cancer-related fatigue in pediatric acute lymphoblastic leukemia.
Published in:
Supportive Care in Cancer, 2020, v. 28, n. 12, p. 5983, doi. 10.1007/s00520-020-05444-7
By:
- Steur, L. M. H.;
- Kaspers, G. J. L.;
- van Someren, E. J. W.;
- van Eijkelenburg, N. K. A.;
- van der Sluis, I. M.;
- Dors, N.;
- van den Bos, C.;
- Tissing, W. J. E.;
- Grootenhuis, M. A.;
- van Litsenburg, R. R. L.
Publication type:
Article
Getting control during follow-up visits: the views and experiences of parents on tumor surveillance after their children have completed therapy for rhabdomyosarcoma or Ewing sarcoma.
Published in:
2019
By:
- Vaarwerk, B.;
- Limperg, P. F.;
- Naafs-Wilstra, M. C.;
- Merks, J. H. M.;
- Grootenhuis, M. A.
Publication type:
journal article
Quality of Life, Developmental Milestones, and Self Esteem of Young Adults with Congenital Hypothyroidism Diagnosed by Neonatal Screening.
Published in:
Journal of Clinical Endocrinology & Metabolism, 2008, v. 93, n. 7, p. 2654, doi. 10.1210/jc.2007-1560
By:
- der Sluijs Veer, L. van;
- Kempers, M. J. E.;
- Last, B. F.;
- Vulsma, T.;
- Grootenhuis, M. A.
Publication type:
Article
Intellectual and Motor Development of Young Adults with Congenital Hypothyroidism Diagnosed by Neonatal Screening.
Published in:
Journal of Clinical Endocrinology & Metabolism, 2006, v. 91, n. 2, p. 418, doi. 10.1210/jc.2005-1209
By:
- Kempers, M. J. E.;
- van der Sluijs Veer, L.;
- Nijhuis-van der Sanden, M. W. G.;
- Kooistra, L.;
- Wiedijk, B. M.;
- Faber, I.;
- Last, B. F.;
- de Vijlder, J. J. M.;
- Grootenhuis, M. A.;
- Vulsma, T.
Publication type:
Article
Dutch norms for the Strengths and Difficulties Questionnaire (SDQ) - parent form for children aged 2-18 years.
Published in:
2018
By:
- Maurice-Stam, H.;
- Haverman, L.;
- Splinter, A.;
- van Oers, H. A.;
- Schepers, S. A.;
- Grootenhuis, M. A.
Publication type:
journal article
Health related quality of life in Dutch infants, toddlers, and young children.
Published in:
2017
By:
- Schepers, S. A.;
- van Oers, H. A.;
- Maurice-Stam, H.;
- Huisman, J.;
- Verhaak, C. M.;
- Grootenhuis, M. A.;
- Haverman, L.
Publication type:
journal article
Coping strategies of retinoblastoma survivors in relation to behavioural problems.
Published in:
Psycho-Oncology, 2009, v. 18, n. 12, p. 1281, doi. 10.1002/pon.1507
By:
- van Dijk, J.;
- Grootenhuis, M. A.;
- Imhof, S. M.;
- Cohen-Kettenis, P. T.;
- Moll, A. C.;
- Huisman, J.
Publication type:
Article
Quality of life and current coping in young adult survivors of childhood cancer: positive expectations about the further course of the disease were correlated with better quality of life.
Published in:
Psycho-Oncology, 2006, v. 15, n. 1, p. 31, doi. 10.1002/pon.920
By:
- Stam, H.;
- Grootenhuis, M. A.;
- Caron, H. N.;
- Last, B. F.
Publication type:
Article
Study protocol: DexaDays-2, hydrocortisone for treatment of dexamethasone-induced neurobehavioral side effects in pediatric leukemia patients: a double-blind placebo controlled randomized intervention study with cross-over design.
Published in:
2021
By:
- van Hulst, A. M.;
- Verwaaijen, E. J.;
- Fiocco, M. F.;
- Pluijm, S. M. F.;
- Grootenhuis, M. A.;
- Pieters, R.;
- van den Akker, E. L. T.;
- van den Heuvel-Eibrink, M. M.
Publication type:
journal article
P06.03 Child, parent, and clinician selection of patient-reported outcome measures to use in pediatric neuro-oncology outpatient follow-up clinics.
Published in:
Neuro-Oncology, 2021, v. 23, p. ii24, doi. 10.1093/neuonc/noab180.081
By:
- Bull, K S;
- Stubley, S;
- Freeman, A;
- Liossi, C;
- Darlington, A E;
- Grootenhuis, M A;
- Hargrave, D;
- Morris, C;
- Walker, D A;
- Kennedy, C R
Publication type:
Article
Predictors of health-related quality of life in children and adolescents with juvenile idiopathic arthritis: results from a Web-based survey.
Published in:
2012
By:
- Haverman, L;
- Grootenhuis, M A;
- van den Berg, J M;
- van Veenendaal, M;
- Dolman, K M;
- Swart, J F;
- Kuijpers, T W;
- van Rossum, M A J
Publication type:
Journal Article
Psychometric properties and norm scores of the sleep self report in Dutch children.
Published in:
2019
By:
- Steur, L. M. H.;
- Grootenhuis, M. A.;
- Terwee, C. B.;
- Pillen, S.;
- Wolters, N. G. J.;
- Kaspers, G. J. L.;
- van Litsenburg, R. R. L.
Publication type:
journal article
A community-based survey of posttraumatic stress disorder in the Netherlands.
Published in:
Journal of Traumatic Stress, 2009, v. 22, n. 1, p. 74, doi. 10.1002/jts.20379
By:
- Bronner, M. B.;
- Peek, N.;
- Vries, M. de;
- Bronner, A. E.;
- Last, B. F.;
- Grootenhuis, M. A.
Publication type:
Article
Parental stress before, during, and after pediatric stem cell transplantation: a review article.
Published in:
2009
By:
- Vrijmoet-Wiersma CM;
- Egeler RM;
- Koopman HM;
- Norberg AL;
- Grootenhuis MA;
- Vrijmoet-Wiersma, C M J;
- Egeler, R M;
- Koopman, H M;
- Norberg, A Lindahl;
- Grootenhuis, M A
Publication type:
journal article
Parental stress and perceived vulnerability at 5 and 10 years after pediatric SCT.
Published in:
Bone Marrow Transplantation, 2010, v. 45, n. 6, p. 1102, doi. 10.1038/bmt.2009.309
By:
- Vrijmoet-Wiersma, C. M. J.;
- Egeler, R. M.;
- Koopman, H. M.;
- Bresters, D.;
- Norberg, A. L.;
- Grootenhuis, M. A.
Publication type:
Article
Remarkable differences: the course of life of young adults with galactosaemia and PKU.
Published in:
Journal of Inherited Metabolic Disease, 2009, v. 32, n. 6, p. 706, doi. 10.1007/s10545-009-1253-2
By:
- Bosch, A.;
- Maurice-Stam, H.;
- Wijburg, F.;
- Grootenhuis, M.
Publication type:
Article
The course of life and quality of life of early and continuously treated Dutch patients with phenylketonuria.
Published in:
Journal of Inherited Metabolic Disease, 2007, v. 30, n. 1, p. 29, doi. 10.1007/s10545-006-0433-6
By:
- Bosch, A.;
- Tybout, W.;
- Spronsen, F.;
- Valk, H.;
- Wijburg, F.;
- Grootenhuis, M.
Publication type:
Article
Moderators of the Efficacy of a Psychosocial Group Intervention for Children With Chronic Illness and Their Parents: What Works for Whom?
Published in:
Journal of Pediatric Psychology, 2015, v. 40, n. 2, p. 214, doi. 10.1093/jpepsy/jsu092
By:
- Scholten, Linde;
- Willemen, A. M.;
- Napoleone, E.;
- Maurice-Stam, H.;
- Last, B. F.;
- van Dijk-Lokkart, E. M.;
- Zandbelt, N.;
- Ensink, E.;
- Grootenhuis, M. A.;
- Schuengel, C.
Publication type:
Article
Adaptive behavior impaired in children with low-grade glioma.
Published in:
2019
By:
- de Lande, R. S. van;
- Maurice‐Stam, H.;
- Marchal, J. P.;
- Vuurden, D. G. van;
- Vandertop, W. P;
- Grootenhuis, M. A.;
- Schouten‐van Meeteren, A. Y. N.;
- Maurice-Stam, H;
- Schouten-van Meeteren, A Y N
Publication type:
journal article
Health-related quality of life of children on treatment for acute lymphoblastic leukemia: A systematic review.
Published in:
2017
By:
- Fardell, Joanna E.;
- Vetsch, Janine;
- Trahair, T.;
- Mateos, M. K.;
- Grootenhuis, M. A.;
- Touyz, L. M.;
- Marshall, G. M.;
- Wakefield, C. E.
Publication type:
journal article
P0630 PRELIMINARY EVALUATION OF A SHORT PSYCHO-EDUCATIVE GROUP INTERVENTION FOR ADOLESCENTS WITH IBD.
Published in:
Journal of Pediatric Gastroenterology & Nutrition, 2004, v. 39, p. S297, doi. 10.1097/00005176-200406001-00754
By:
- De Boer, M.;
- Grootenhuis, M. A.;
- Derkx, B. H. F.;
- Last, B. F.
Publication type:
Article
The effectiviness of an innovative web-based application to monitor HRQOL problems in paediatric rheumatology clinical practice.
Published in:
2011
By:
- Haverman, L.;
- Rossum, M. A. J. van;
- Heymans, H. S. A.;
- Kuijpers, T. W.;
- Grootenhuis, M. A.
Publication type:
Abstract
Anxiety and Depression in Mothers and Fathers of a Chronically Ill Child.
Published in:
Maternal & Child Health Journal, 2014, v. 18, n. 8, p. 1993, doi. 10.1007/s10995-014-1445-8
By:
- Oers, H.;
- Haverman, L.;
- Limperg, P.;
- Dijk-Lokkart, E.;
- Maurice-Stam, H.;
- Grootenhuis, M.
Publication type:
Article
Health-related quality of life of survivors of childhood acute lymphoblastic leukemia: a systematic review.
Published in:
2018
By:
- Vetsch, J.;
- Wakefield, C. E.;
- Robertson, E. G.;
- Trahair, T. N.;
- Mateos, M. K.;
- Grootenhuis, M.;
- Marshall, G. M.;
- Cohn, R. J.;
- Fardell, J. E.
Publication type:
journal article
Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders.
Published in:
2018
By:
- Limperg, P. F.;
- Haverman, L.;
- Maurice-Stam, H.;
- Coppens, M.;
- Valk, C.;
- Kruip, M. J. H. A.;
- Eikenboom, J.;
- Peters, M.;
- Grootenhuis, M. A.
Publication type:
journal article
Coping strategies and quality of life of adolescents with inflammatory bowel disease.
Published in:
2004
By:
- van der Zaag-Loonen, H. J.;
- Grootenhuis, M. A.;
- Last, B. F.;
- Derkx, H. H. F.
Publication type:
journal article
Male gender, school attendance and sports participation are positively associated with health‐related quality of life in children and adolescents with congenital bleeding disorders.
Published in:
Haemophilia, 2018, v. 24, n. 3, p. 395, doi. 10.1111/hae.13420
By:
- Limperg, P. F.;
- Joosten, M. M. H.;
- Grootenhuis, M. A.;
- Haverman, L.;
- Fijnvandraat, K.;
- Peters, M.
Publication type:
Article
Psychosocial care for children with haemophilia and their parents in the Netherlands.
Published in:
Haemophilia, 2017, v. 23, p. 362, doi. 10.1111/hae.13186
By:
- Limperg, P.F.;
- Haverman, L.;
- Beijlevelt, M.;
- Pot, M.;
- Zaal, G.;
- Boer, W.A.;
- Fijnvandraat, K.;
- Peters, M.;
- Grootenhuis, M. A.
Publication type:
Article
Themes in daily life of adolescents and young adults with congenital bleeding disorders: a qualitative study.
Published in:
Haemophilia, 2016, v. 22, n. 4, p. e330, doi. 10.1111/hae.12961
By:
- Limperg, P.;
- Peters, M.;
- Gibbons, E.;
- Coppens, M.;
- Valk, C.;
- Grootenhuis, M.;
- Haverman, L.
Publication type:
Article
Psychosocial functioning of mothers of boys with haemophilia.
Published in:
Haemophilia, 2016, v. 22, n. 1, p. e57, doi. 10.1111/hae.12831
By:
- Limperg, P. F.;
- Haverman, L.;
- Peters, M.;
- Grootenhuis, M. A.
Publication type:
Article
Reliability, validity and evaluation of the Haemophilia Coping and Perception Test.
Published in:
Haemophilia, 2015, v. 21, n. 3, p. e243, doi. 10.1111/hae.12650
By:
- Limperg, P. F.;
- Peters, M.;
- Colland, V. T.;
- Ommen, C. H.;
- Beijlevelt, M.;
- Grootenhuis, M. A.;
- Haverman, L.
Publication type:
Article
Quality of life in paediatric inflammatory bowel disease measured by a generic and a disease-specific questionnaire.
Published in:
2002
By:
- Loonen, HJ;
- Grootenhuis, MA;
- Last, BF;
- Koopman, HM;
- Derkx, HHF;
- Loonen, H J;
- Grootenhuis, M A;
- Last, B F;
- Koopman, H M;
- Derkx, H H F
Publication type:
journal article
Implicazioni psicosociali nei pazienti con dermatite atopica infantile.
Published in:
European Journal of Pediatric Dermatology, 2008, v. 18, n. 2, p. 97
By:
- Brenninkmeijer, E. E. A.;
- Legierse, C. M.;
- Sillevis Smitt, J. H.;
- Last, B. F.;
- Grootenhuis, M. A.;
- Bos, J. D.
Publication type:
Article
Impact of childhood vitiligo on adult life.
Published in:
British Journal of Dermatology, 2008, v. 159, n. 4, p. 915, doi. 10.1111/j.1365-2133.2008.08788.x
By:
- Linthorst Homan, M. W.;
- de Korte, J.;
- Grootenhuis, M. A.;
- Bos, J. D.;
- Sprangers, M. A. G.;
- van der Veen, J. P. W.
Publication type:
Article
One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer.
Published in:
Child: Care, Health & Development, 2005, v. 31, n. 1, p. 75, doi. 10.1111/j.1365-2214.2005.00459.x
By:
- Houtzager, B. A.;
- Grootenhuis, M. A.;
- Hoekstra‐Weebers, J. E. H. M.;
- Last, B. F.
Publication type:
Article

Found: 41