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- Title
Acceptability and utilisation of patient‐initiated follow‐up for endometrial cancer amongst women from diverse ethnic and social backgrounds: A mixed methods study.
- Authors
Kumarakulasingam, Priyanga; McDermott, Hilary; Patel, Nafisa; Boutler, Louise; Tincello, Douglas G.; Peel, David; Moss, Esther L.
- Abstract
Introduction: A shift in focus towards risk stratification and survivorship in early stage endometrial cancer (EC) has led to the replacement of hospital follow‐up (HFU) with patient‐initiated follow‐up (PIFU) schemes. Methods: A mixed methods study was undertaken prospectively to investigate utility and patient satisfaction with a newly introduced PIFU scheme. Results: Two hundred and twenty‐eight women were enrolled onto PIFU in the first 18 months, median age 65 years (range 42–90 years). Twenty‐four (10.5%) women were non‐British White ethnicity. Forty‐five women contacted the Clinical Nurse Specialist (CNS) at least once (19.7%), the primary reason being vaginal bleeding/discharge (42%). Contact was greater in first six months on the scheme compared to the second 6 months, and women who made contact were significantly younger than those who did not (57 years vs. 65 years, p < 0.001). Conclusions: PIFU appears to be well received by the majority of women. Although many of the CNS contacts were due to physical symptoms, a number were for psychological support or reassurance. Younger women had greater CNS contact indicating that they may benefit from a greater level support. Patient feedback of the PIFU scheme was positive, with many women reporting that it enabled them to have more control over their own health.
- Subjects
CHI-squared test; ETHNIC groups; PATIENT aftercare; INTERVIEWING; LONGITUDINAL method; RESEARCH methodology; NURSE-patient relationships; NURSE practitioners; PATIENT satisfaction; QUALITY of life; QUESTIONNAIRES; PSYCHOLOGY of women; QUALITATIVE research; ENDOMETRIAL tumors; SOCIAL support; THEMATIC analysis; VAGINAL discharge; DATA analysis software; PATIENTS' attitudes; DESCRIPTIVE statistics; EARLY detection of cancer; MANN Whitney U Test
- Publication
European Journal of Cancer Care, 2019, Vol 28, Issue 2, pN.PAG
- ISSN
0961-5423
- Publication type
Article
- DOI
10.1111/ecc.12997