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The Human Genome Organisation (HUGO) and the 2020 COVID-19 pandemic.
- Published in:
- 2021
- By:
- Publication type:
- Letter
Statement on bioinformatics and capturing the benefits of genome sequencing for society.
- Published in:
- Human Genomics, 2019, v. 13, n. 1, p. N.PAG, doi. 10.1186/s40246-019-0208-4
- By:
- Publication type:
- Article
Introduction: the why and whither of genomic data sharing.
- Published in:
- Human Genetics, 2018, v. 137, n. 8, p. 569, doi. 10.1007/s00439-018-1923-y
- By:
- Publication type:
- Article
South Korea: in the midst of a privacy reform centered on data sharing.
- Published in:
- Human Genetics, 2018, v. 137, n. 8, p. 627, doi. 10.1007/s00439-018-1920-1
- By:
- Publication type:
- Article
Genomic databases access agreements: legal validity and possible sanctions.
- Published in:
- Human Genetics, 2011, v. 130, n. 3, p. 441, doi. 10.1007/s00439-011-1044-3
- By:
- Publication type:
- Article
Canadian Healthcare Professionals' Views and Attitudes toward Risk-Stratified Breast Cancer Screening.
- Published in:
- Journal of Personalized Medicine, 2023, v. 13, n. 7, p. 1027, doi. 10.3390/jpm13071027
- By:
- Publication type:
- Article
Personalized Risk Assessment for Prevention and Early Detection of Breast Cancer: Integration and Implementation (PERSPECTIVE I&I).
- Published in:
- Journal of Personalized Medicine, 2021, v. 11, n. 6, p. 511, doi. 10.3390/jpm11060511
- By:
- Publication type:
- Article
Women's Views on Multifactorial Breast Cancer Risk Assessment and Risk-Stratified Screening: A Population-Based Survey from Four Provinces in Canada.
- Published in:
- Journal of Personalized Medicine, 2021, v. 11, n. 2, p. 95, doi. 10.3390/jpm11020095
- By:
- Publication type:
- Article
Implementing Multifactorial Risk Assessment with Polygenic Risk Scores for Personalized Breast Cancer Screening in the Population Setting: Challenges and Opportunities.
- Published in:
- Cancers, 2024, v. 16, n. 11, p. 2116, doi. 10.3390/cancers16112116
- By:
- Publication type:
- Article
Studies in Cancer Epigenetics through a Sex and Gendered Lens: A Comprehensive Scoping Review.
- Published in:
- Cancers, 2023, v. 15, n. 17, p. 4207, doi. 10.3390/cancers15174207
- By:
- Publication type:
- Article
A Collaborative Model to Implement Flexible, Accessible and Efficient Oncogenetic Services for Hereditary Breast and Ovarian Cancer: The C-MOnGene Study.
- Published in:
- Cancers, 2021, v. 13, n. 11, p. 2729, doi. 10.3390/cancers13112729
- By:
- Publication type:
- Article
Regulating cancer risk prediction: legal considerations and stakeholder perspectives on the Canadian context.
- Published in:
- Human Genetics, 2023, v. 142, n. 7, p. 981, doi. 10.1007/s00439-023-02576-8
- By:
- Publication type:
- Article
Rare diseases and space health: optimizing synergies from scientific questions to care.
- Published in:
- NPJ Microgravity, 2022, v. 8, n. 1, p. 1, doi. 10.1038/s41526-022-00224-5
- By:
- Publication type:
- Article
Benefits and barriers in the design of harmonized access agreements for international data sharing.
- Published in:
- Scientific Data, 2019, v. 6, n. 1, p. N.PAG, doi. 10.1038/s41597-019-0310-4
- By:
- Publication type:
- Article
Breast Cancer Risk Estimation and Personal Insurance: A Qualitative Study Presenting Perspectives from Canadian Patients and Decision Makers.
- Published in:
- Frontiers in Genetics, 2017, p. 1, doi. 10.3389/fgene.2017.00128
- By:
- Publication type:
- Article
Disease Resistance and the Definition of Genetic Enhancement.
- Published in:
- Frontiers in Genetics, 2017, p. 1, doi. 10.3389/fgene.2017.00040
- By:
- Publication type:
- Article
Points-to-consider on the return of results in epigenetic research.
- Published in:
- Genome Medicine, 2019, v. 11, n. 1, p. N.PAG, doi. 10.1186/s13073-019-0646-6
- By:
- Publication type:
- Article
Integrating precision cancer medicine into healthcare—policy, practice, and research challenges.
- Published in:
- Genome Medicine, 2016, v. 8, p. 1, doi. 10.1186/s13073-016-0362-4
- By:
- Publication type:
- Article
Genetic discrimination and life insurance: a systematic review of the evidence.
- Published in:
- BMC Medicine, 2013, v. 11, n. 1, p. 1, doi. 10.1186/1741-7015-11-25
- By:
- Publication type:
- Article
Genetic discrimination and life insurance: a systematic review of the evidence.
- Published in:
- 2013
- By:
- Publication type:
- journal article
Addressing Privacy Concerns in Sharing Viral Sequences and Minimum Contextual Data in a Public Repository During the COVID-19 Pandemic.
- Published in:
- Frontiers in Genetics, 2022, p. 1, doi. 10.3389/fgene.2021.716541
- By:
- Publication type:
- Article
Epigenome data release: a participantcentered approach to privacy protection
- Published in:
- Genome Biology, 2015, v. 16, n. 1, p. 142, doi. 10.1186/s13059-015-0723-0
- By:
- Publication type:
- Article
Genomic cloud computing: legal and ethical points to consider.
- Published in:
- European Journal of Human Genetics, 2015, v. 23, n. 10, p. 1271, doi. 10.1038/ejhg.2014.196
- By:
- Publication type:
- Article
Life insurance: genomic stratification and risk classification.
- Published in:
- European Journal of Human Genetics, 2014, v. 22, n. 5, p. 575, doi. 10.1038/ejhg.2013.228
- By:
- Publication type:
- Article
The emergence of an ethical duty to disclose genetic research results: international perspectives.
- Published in:
- 2006
- By:
- Publication type:
- Correction notice
The emergence of an ethical duty to disclose genetic research results: international perspectives.
- Published in:
- European Journal of Human Genetics, 2006, v. 14, n. 11, p. 1170, doi. 10.1038/sj.ejhg.5201690
- By:
- Publication type:
- Article
Genetic information and life insurance: a ‘real’ risk?
- Published in:
- European Journal of Human Genetics, 2003, v. 11, n. 8, p. 561, doi. 10.1038/sj.ejhg.5200998
- By:
- Publication type:
- Article
Whether, when, how, and how much? General public's and cancer patients' views about the disclosure of genomic secondary findings.
- Published in:
- BMC Medical Genomics, 2021, v. 14, n. 1, p. 1, doi. 10.1186/s12920-021-01016-8
- By:
- Publication type:
- Article
Social acceptability of psilocybin-assisted therapy for existential distress at the end of life: A population-based survey.
- Published in:
- Palliative Medicine, 2024, v. 38, n. 2, p. 272, doi. 10.1177/02692163231222430
- By:
- Publication type:
- Article
Addressing cancer family history at the end of life: How frequent, relevant, and feasible is it? A survey of palliative care providers.
- Published in:
- Palliative Medicine, 2019, v. 33, n. 7, p. 856, doi. 10.1177/0269216319845826
- By:
- Publication type:
- Article
Data Sharing in the Post-Genomic World: The Experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO).
- Published in:
- PLoS Computational Biology, 2012, v. 8, n. 7, p. 1, doi. 10.1371/journal.pcbi.1002549
- By:
- Publication type:
- Article
EpiVar Browser: advanced exploration of epigenomics data under controlled access.
- Published in:
- Bioinformatics, 2024, v. 40, n. 3, p. 1, doi. 10.1093/bioinformatics/btae136
- By:
- Publication type:
- Article
Potential (mis)use of epigenetic age estimators by private companies and public agencies: human rights law should provide ethical guidance.
- Published in:
- Environmental Epigenetics (2058-5888), 2019, v. 5, n. 3, p. N.PAG, doi. 10.1093/eep/dvz018
- By:
- Publication type:
- Article
Editorial: COVID-19 pandemics: Ethical, legal and social issues.
- Published in:
- Frontiers in Genetics, 2022, v. 13, p. 1, doi. 10.3389/fgene.2022.1021865
- By:
- Publication type:
- Article
DATA SHARING, BIOBANKS AND INFORMED CONSENT: A RESEARCH PARADOX?
- Published in:
- McGill Journal of Law & Health / Revue de Droit et Santé de McGill, 2013, v. 7, n. 1, p. 85
- By:
- Publication type:
- Article
The Biobanque québécoise de la COVID-19 (BQC19)—A cohort to prospectively study the clinical and biological determinants of COVID-19 clinical trajectories.
- Published in:
- PLoS ONE, 2021, v. 16, n. 5, p. 1, doi. 10.1371/journal.pone.0245031
- By:
- Publication type:
- Article
Power to the people: a wiki-governance model for biobanks
- Published in:
- Genome Biology, 2012, v. 13, n. 5, p. 158, doi. 10.1186/gb-2012-13-5-158
- By:
- Publication type:
- Article
The European Union's Adequacy Approach to Privacy and International Data Sharing in Health Research.
- Published in:
- Journal of Law, Medicine & Ethics, 2016, v. 44, n. 1, p. 143, doi. 10.1177/1073110516644205
- By:
- Publication type:
- Article
Locating Biobanks in the Canadian Privacy Maze.
- Published in:
- Journal of Law, Medicine & Ethics, 2016, v. 44, n. 1, p. 7, doi. 10.1177/1073110516644185
- By:
- Publication type:
- Article
Privacy and Biobanking in China: A Case of Policy in Transition.
- Published in:
- Journal of Law, Medicine & Ethics, 2015, v. 43, n. 4, p. 726, doi. 10.1111/jlme.12315
- By:
- Publication type:
- Article
Currents in Contemporary Bioethics.
- Published in:
- Journal of Law, Medicine & Ethics, 2012, v. 40, n. 1, p. 143, doi. 10.1111/j.1748-720X.2012.00652.x
- By:
- Publication type:
- Article
Return of Research Results: General Principles and International Perspectives.
- Published in:
- Journal of Law, Medicine & Ethics, 2011, v. 39, n. 4, p. 583, doi. 10.1111/j.1748-720X.2011.00625.x
- By:
- Publication type:
- Article
Currents in Contemporary Ethics.
- Published in:
- Journal of Law, Medicine & Ethics, 2007, v. 35, n. 4, p. 734, doi. 10.1111/j.1748-720X.2007.00195.x
- By:
- Publication type:
- Article
Defusing the legal and ethical minefield of epigenetic applications in the military, defense, and security context.
- Published in:
- Journal of Law & the Biosciences, 2023, v. 10, n. 2, p. 1, doi. 10.1093/jlb/lsad034
- By:
- Publication type:
- Article
Modeling consent in the time of COVID-19.
- Published in:
- Journal of Law & the Biosciences, 2020, v. 7, n. 1, p. 1, doi. 10.1093/jlb/lsaa020
- By:
- Publication type:
- Article
Integrating artificial intelligence into health care through data access: can the GDPR act as a beacon for policymakers?
- Published in:
- Journal of Law & the Biosciences, 2019, v. 6, n. 1, p. 317, doi. 10.1093/jlb/lsz013
- By:
- Publication type:
- Article
Does the end justify the means? A comparative study of the use of DNA testing in the context of family reunification.
- Published in:
- Journal of Law & the Biosciences, 2017, v. 4, n. 2, p. 250, doi. 10.1093/jlb/lsx012
- By:
- Publication type:
- Article
Teaching to the test.
- Published in:
- 2016
- By:
- Publication type:
- Letter to the Editor
After He Jianku: China's biotechnology regulation reforms.
- Published in:
- Medical Law International, 2021, v. 21, n. 2, p. 174, doi. 10.1177/0968533221993504
- By:
- Publication type:
- Article
Communication of genetic information in the palliative care context: Ethical and legal issues.
- Published in:
- Medical Law International, 2018, v. 18, n. 4, p. 219, doi. 10.1177/0968533218762239
- By:
- Publication type:
- Article