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- Title
African American and Hispanic Cancer Survivors' and Caregivers' Experiences in Nebraska.
- Authors
Ratnapradipa, Kendra L.; Napit, Krishtee; King, Keyonna M.; Ramos, Athena K.; Luma, Lady Beverly L.; Dinkel, Danae; Robinson, Tamara; Rohde, Jolene; Schabloske, Laura; Tchouankam, Tatiana; Watanabe-Galloway, Shinobu
- Abstract
Racial and ethnic minority populations experience poorer cancer outcomes compared to non-Hispanic White populations, but qualitative studies have typically focused on single subpopulations. We explored experiences, perceptions, and attitudes toward cancer care services across the care continuum from screening through treatment among African American and Hispanic residents of Nebraska to identify unique needs for education, community outreach, and quality improvement. We conducted four focus groups (N = 19), April-August 2021 with people who were aged 30 or older and who self-identified as African American or Hispanic and as cancer survivors or caregivers. Sessions followed a structured facilitation guide, were audio recorded and transcribed, and were analyzed with a directed content analysis approach. Historical, cultural, and socioeconomic factors often led to delayed cancer care, such as general disuse of healthcare until symptoms were severe due to mistrust and cost of missing work. Obstacles to care included financial barriers, transportation, lack of support groups, and language-appropriate services (for Hispanic groups). Knowledge of cancer and cancer prevention varied widely; we identified a need for better community education about cancer within the urban Hispanic community. Participants had positive experiences and a sense of hope from the cancer care team. African American and Hispanic participants shared many similar perspectives about cancer care. Our results are being used in collaboration with national and regional cancer support organizations to expand their reach in communities of color, but structural and cultural barriers still need to be addressed.
- Subjects
NEBRASKA; TUMOR diagnosis; HEALTH literacy; HEALTH services accessibility; AFRICAN Americans; RESEARCH funding; QUALITATIVE research; ACADEMIC medical centers; FOCUS groups; HISPANIC Americans; CANCER patient medical care; CONTENT analysis; HEALTH; DESCRIPTIVE statistics; INFORMATION resources; EXPERIENCE; RACE; THEMATIC analysis; SOUND recordings; PSYCHOLOGY of caregivers; CANCER patient psychology; NEEDS assessment; QUALITY assurance; MEDICAL screening; DATA analysis software; SOCIAL support; CAREGIVER attitudes; COMMUNICATION barriers
- Publication
Journal of Immigrant & Minority Health, 2024, Vol 26, Issue 3, p554
- ISSN
1557-1912
- Publication type
Article
- DOI
10.1007/s10903-023-01570-6