We found a match
Your institution may have access to this item. Find your institution then sign in to continue.
- Title
Iranian future healthcare professionals' knowledge and opinions about rare diseases: cross-sectional study.
- Authors
Jahanshahi, Reza; Nasirzadeh, Amirreza; Farzan, Mahan; Domaradzki, Jan; Jouybari, Leila; Sanagoo, Akram; Farzan, Mahour; Aghazadeh-Habashi, Komeil; Fallah Faraghe, Ahmadreza; Bagheri, Sadegh; Samiee, Marziyeh; Ansari, Arina; Eskandari, Kimia; Namakkoobi, Negar; Soltanimoghadam, Fatemeh; Mashali, Hadi; Yavari, Erfan; Bay, Saba; Memaripanah, Nafiseh; Meftah, Elahe
- Abstract
<bold>Background: </bold>Rare diseases are a new global health priority, requiring evidence-based estimates of the global prevalence of diseases to inform public policymakers and provide a serious challenge to the healthcare system that must not be ignored. The purpose of this study is to investigate Iranian future healthcare professionals' knowledge and opinions about rare diseases.<bold>Results: </bold>A total of 6838 students responded to the questionnaire. Nursing and medical students had the highest participation. Almost 85% of participants rated their knowledge about rare diseases as poor or insufficient. While nearly 70 percent of participants took courses about rare diseases at university. Finally, 72.7% of future healthcare professionals did not feel ready to take care of a patient with a rare disease.<bold>Conclusion: </bold>The present study has indicated a gap in Iranian medical students' knowledge of rare diseases. The researchers believe that health science policymakers should make a joint effort to improve knowledge about rare diseases. Including courses with regard to rare diseases would be of benefit to future healthcare professionals.
- Publication
Orphanet Journal of Rare Diseases, 2022, Vol 17, Issue 1, p1
- ISSN
1750-1172
- Publication type
journal article
- DOI
10.1186/s13023-022-02458-8