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- Title
Necessidades de crianças com síndrome congênita pelo Zika vírus no contexto domiciliar.
- Authors
dos Santos Duarte, Jhullyany; Farias Santos, Lunara Oliveira; Schechtman Sette, Gabriela Cunha; de Farias Cavalcanti Santos, Thaisa; Pottes Alves, Fábia Alexandra; de Lavor Coriolano-Marinus, Maria Wanderleya
- Abstract
Background: Families of children with Zika virus have faced several demands related to child care, at home and in social life. Objective: To understand family dynamics and the promotion of care for children with Congenital Zika Virus Syndrome in the home context. Method: Qualitative study, in which eight families of children with Congenital Zika Virus Syndrome participated. Semi-structured interviews were conducted through home visits. Results: Three categories emerged that portray home care and the challenges faced by families: needs of children in the home environment; family demands; care coordination. Child-centered problems were identified, such as difficulty in swallowing, sleep and rest, and development, family-centered problems such as caregiver burden and fragmentation of care in the health network. Conclusion: The care of children with Zika virus-related microcephaly needs to be extended to a family-centered care, based on a coordinated and integrated health network based on Primary care.
- Publication
Cadernos Saúde Coletiva, 2019, Vol 27, Issue 3, p249
- ISSN
1414-462X
- Publication type
Article
- DOI
10.1590/1414-462X201900030237