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- Title
Clinical registries: Not yet perfect, but essential for a high‐functioning health system.
- Authors
Ahern, Susannah
- Abstract
The value of registries for pulmonary diseases has been well described.[3] One of the longest-standing registries in Australia is the Australian Cystic Fibrosis Data Registry (ACFDR). Attributing registry impact, as registries are observational studies, can also be challenging, particularly as registries seek to regularly communicate with non-academic and non-clinical stakeholders. Keywords: Australian Cystic Fibrosis Data Registry; clinical registry; epidemiology EN Australian Cystic Fibrosis Data Registry clinical registry epidemiology 983 985 3 10/20/23 20231101 NES 231101 Summary: Australia currently has over 100 clinical registries, including many for pulmonary diseases.
- Subjects
BRONCHIECTASIS; MEDICAL quality control; CLINICAL governance; COVID-19 pandemic; CYSTIC fibrosis; IDIOPATHIC pulmonary fibrosis; CLINICAL trials monitoring
- Publication
Respirology, 2023, Vol 28, Issue 11, p983
- ISSN
1323-7799
- Publication type
Article
- DOI
10.1111/resp.14562