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- Title
Caregiving Experience for Children with Intellectual Disabilities among Parents in a Developing Area in China.
- Authors
Yang, Xue; Byrne, Victoria; Chiu, Marcus Y. L.
- Abstract
Background By utilizing grounded theory methodology, this study attempted to fill a gap whereby little research explored family caregiving perspectives in China where public support is insufficient and familial responsibility is highly valued. Background By utilizing grounded theory methodology, this study attempted to fill a gap whereby little research explored family caregiving perspectives in China where public support is insufficient and familial responsibility is highly valued. Results The central idea emerging from the data encompassed five broad categories of caregiving experiences: (i) unavoidable caregiving responsibility and (ii) uncertain future as the greatest worries which are the perception towards the recipient; (iii) compromising quality of life and (iv) positive roles of caregiving tasks which focus on the self; and (v) community support which is the perceived support from the external system. Conclusion A recursive relationship existed among these categories. Chinese culture and traditional beliefs dominated throughout these issues. The implications and limitations of this study were discussed.
- Subjects
CHINA; CHILD care; CARE of children with intellectual disabilities; PARENTS; GROUNDED theory; PARENTS of children with disabilities; CHILDREN; MANNERS &; customs; PEOPLE with intellectual disabilities; CAREGIVERS; FATHERS; MOTHERS; PARENT-child relationships; QUALITY of life; SELF-perception; QUALITATIVE research; SOCIAL support; WELL-being; BURDEN of care
- Publication
Journal of Applied Research in Intellectual Disabilities, 2016, Vol 29, Issue 1, p46
- ISSN
1360-2322
- Publication type
Article
- DOI
10.1111/jar.12157