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- Title
Association between participation at home and functional skills in children and adolescents with Down syndrome: A cross‐sectional study.
- Authors
Brugnaro, Beatriz Helena; Kraus de Camargo, Olaf; Pfeifer, Luzia Iara; Pavão, Silvia Letícia; Hlyva, Oksana; Rocha, Nelci Adriana Cicuto Ferreira
- Abstract
Background: According to a biopsychosocial approach to health and disability, participation at home and functional skills are important components of the functioning. Therefore, knowledge about interactions between these components allows for targeting specific interventions. Objective: This study investigated whether participation opportunities (frequency and involvement) for children/adolescents with Down syndrome (DS) in a realistic environment at their own home are associated with the functional skills related to the domains of Daily Activities, Mobility, Social/Cognitive and Responsibility. Methods: This was an observational study. Forty‐eight children/adolescents with DS participated (mean age: 10.73 ± 3.43; n = 27 females). Participants were evaluated using the Participation and Environment Measure for Children and Youth (PEM‐CY) home environment setting (raw frequency and engagement scores) and Pediatric Evaluation of Disability Inventory speedy version (PEDI‐CAT‐SV) (continuous score). Results: Significant and positive correlations were found between the frequency of participation at home with Daily Activities (ro = 0.320), Social/Cognitive (ro = 0.423) and Responsibility (ro = 0.455). For involvement, significant and positive correlations were found with Daily Activities (ro = 0.297), Social/Cognitive (ro = 0.380) and Responsibility (ro = 0.380). For the PEDI‐CAT‐SV Mobility, no significant correlation was found. Conclusions: Higher frequency and involvement of participation at home are associated with greater functional skills assessed, except for Mobility. This study provided pioneering insights about the relationships between the level of home participation and functional skills in DS, generating evidence that could guide approaches to participation‐focused intervention.
- Subjects
SOCIAL participation; HOME environment; SCIENTIFIC observation; DOWN syndrome; FUNCTIONAL status; CROSS-sectional method; ACTIVITIES of daily living; COGNITION; RESPONSIBILITY; FUNCTIONAL assessment; PHYSICAL mobility; QUESTIONNAIRES; RESEARCH funding; SOCIAL skills
- Publication
Child: Care, Health & Development, 2024, Vol 50, Issue 1, p1
- ISSN
0305-1862
- Publication type
Article
- DOI
10.1111/cch.13197