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- Title
QUALITY OF LIFE OF MOTHERS OF CHILDREN WITH CONGENITAL SYNDROME AFFECTED BY ZIKA VIRUS.
- Authors
Lobão de Araújo Costa, Paulo Rogério; Arruda Aragão, Francisca Bruna; Nascimento Serra, Jacira do; Andrade, Marcelo Sousa; Reis, Andréa Dias; Desterro Soares Brandão Nascimento, Maria do
- Abstract
Objective: To investigate how mothers of children with congenital syndrome (microcephaly) associated with Zika virus perceive their quality of life. Methods: This is a qualitative study carried out in two stages: at the Maternal and Child University Hospital and at Casa de Apoio Ninar through semi-structured interviews with mothers of children with congenital syndrome associated with Zika virus. Ten women comprised the sample. Results: In line with the critical discourse analysis, four categories emerged based on Fairclough’s 2008 assumptions: Quality of Life and Health — quality of life perception associated with the broad meaning of the term health; Quality of Life and Health Care Systems — characterized by care instability and fragmentation; Quality of Life and Free Time — lack of free time for activities of daily living and leisure; Quality of Life and Future Perspectives — lack of future perspective, considering that most participants had to stop working and studying to take care of their children. Conclusions: Mothers of children with congenital syndrome associated with Zika virus are devoted to their children’s care. Their lack of prospects was considered a consequence of the lack of time for activities of daily living and leisure.
- Subjects
ZIKA virus infections; ZIKA virus; MOTHERS; QUALITY of life; CRITICAL discourse analysis
- Publication
Revista Paulista de Pediatria, 2021, Vol 39, p1
- ISSN
0103-0582
- Publication type
Article
- DOI
10.1590/1984-0462/2021/39/2019231