We found a match
Your institution may have access to this item. Find your institution then sign in to continue.
- Title
Perceptions and Experiences of Nutrition Interventions in Individuals with Amyotrophic Lateral Sclerosis (ALS) and their Caregivers.
- Authors
GUILLEMIN, LELAND; HOFSTEDE, JESSICA; ANDERSON, TEIGAN; WALKEDEN, HAILEY; SCHELLENBERG, KERRI; KANG, ESTER; BERRY, DAYNA; LEFEBVRE, STEPHANIE; LIEFFERS, JESSICA R. L.
- Abstract
Nutrition concerns are prevalent in individuals with Amyotrophic Lateral Sclerosis (ALS). Despite the prevalence of nutrition concerns, few data are available on perceptions and experiences of nutrition interventions in individuals with ALS and their caregivers; this study aimed to collect this information. An online survey was developed and hosted on Survey Monkey®. Individuals with ALS and their caregivers from Saskatchewan, Canada, were invited to complete the survey through email to attendees of the ALS Clinic (Saskatoon, Canada), and via the ALS Society of Saskatchewan Facebook page in February--March, 2021. Quantitative data were analyzed using descriptive statistics. Twelve eligible respondents completed the survey (n= 10 individuals with ALS; n = 2 caregivers). The present study found nutrition was important to respondents and there was interest in trying diets and supplements for ALS management; of note, many respondents were interested in exploring the ketogenic diet. Six (50%) respondents had weight loss concerns. All respondents would recommend consulting with a dietitian upon being diagnosed with ALS. Many respondents reported a predefined negative perception of tube feeding. The results of this study suggest that increasing the accessibility of dietitians could positively impact ALS-related care. The findings also provide guidance for dietitians to enhance nutrition care for individuals with ALS.
- Subjects
SASKATCHEWAN; CAREGIVER attitudes; KETOGENIC diet; MEDITERRANEAN diet; REGULATION of body weight; OCCUPATIONAL roles; TEAMS in the workplace; VEGETARIANISM; CROSS-sectional method; LOW-carbohydrate diet; PATIENTS' attitudes; SURVEYS; DIETARY supplements; AMYOTROPHIC lateral sclerosis; WEIGHT loss; HIGH-protein diet; INTERPROFESSIONAL relations; MEDICAL referrals; ENTERAL feeding; DIETARY fats; NUTRITIONAL status; GOAL (Psychology)
- Publication
Canadian Journal of Dietetic Practice & Research, 2022, Vol 83, Issue 4, p193
- ISSN
1486-3847
- Publication type
Article
- DOI
10.3148/cjdpr-2022-014