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- Title
Empowering Parents as Co-producers: Personal Assistance for Families with Disabled Children.
- Authors
Line Jenhaug; Askheim, Ole Petter
- Abstract
Personal assistance (PA) is seen as an important tool for empowerment, independence and participation for disabled people, traditionally for adults. In Norway, PA was extended to families with disabled children in 2006, but the extent so far is modest. The change meant that the parents could act as managers for their children's assistants. A central issue in this article is to what extent co-producing PA with the municipality empowers the parents as family managers. The empirical basis is a study among Norwegian parents with disabled children who receive PA. The data indicate that PA makes parents feel more empowered and improves their control and coping. It also gives their children the benefit of both parental care and increasing independence. However, in the decision-making process of granting and following up PA, the parents also experience that they are not regarded as equal co-producers by the municipal services.
- Subjects
NORWAY; PARENTS of children with disabilities; FAMILY services; FAMILIES of people with disabilities; SELF-efficacy; AUTONOMY (Psychology); SOCIAL participation; CARE of children with disabilities; FAMILY relationships of children with disabilities; PSYCHOLOGICAL adaptation; DECISION making; ACTIVITIES of daily living; PARENT attitudes
- Publication
Scandinavian Journal of Disability Research, 2018, Vol 20, Issue 1, p266
- ISSN
1501-7419
- Publication type
Article
- DOI
10.16993/sjdr.57