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- Title
Informal caregivers – A missing voice in clinical ethics.
- Authors
Glos, Aleksandra
- Abstract
This paper argues that the missing voice in clinical ethics is that of informal caregivers. Despite their substantial contribution to care provided to individuals with disabilities, chronic illness or dementia, informal caregivers are rarely thought of as members of the healthcare team and their narratives are rarely listened to and included in clinical and ethical decisions. Addressing this gap, this paper discusses the reasons for the systemic misrecognition of informal caregivers in healthcare systems and argues for their greater narrative inclusion on the clinical, legal and social planes.
- Subjects
CAREGIVERS; ETHICS; PEOPLE with disabilities; CHRONIC diseases; HUMAN voice
- Publication
Clinical Ethics, 2024, Vol 19, Issue 2, p143
- ISSN
1477-7509
- Publication type
Article
- DOI
10.1177/14777509231210795