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- Title
Physical, Cognitive, Emotional, and Social Health Outcomes of Parents in the First Six Months after Childhood Critical Illness: A Prospective Single Centre Study.
- Authors
Poh, Pei-Fen; Lee, Jan Hau; Sultana, Rehena; Manning, Joseph C.; Carey, Matthew C.; Latour, Jos M.
- Abstract
Childhood critical illness can have long-term effects on families, but the extent and trajectory of recovery for parents are unknown. Using prospective longitudinal design, we describe the health outcomes of parents and their trajectory six months after paediatric intensive care unit (PICU) discharge. Parents reported health outcomes at PICU discharge (baseline), and 1-, 3-, and 6-months post-discharge. We used the Pediatric Quality-of-Life Family Impact Module, Patient Health Questionnaire-4, and post-traumatic stress disorder (PTSD) Checklist for DSM-5. The group-based trajectory model was used to identify recovery patterns. We included 128 parents of children aged 1 month to 18 years, admitted to the PICU for ≥48 h. Three post-discharge composite health trajectory groups were classified: 54 mild (42%), 68 moderate (53%), and 6 severe (4%). Parents in the mild and moderate groups returned to baseline health within the first 3 months, but those in the severe group exhibited worse outcomes at 6-months. The mean (SD) PICU stay durations for mild, moderate, and severe groups were 9 (16), 7 (10), and 38 (61) days; days of mechanical ventilation were 4 (5), 4 (7), and 18 (25) days; and readmission rates were 12 (22%), 23 (34%), and 4 (66%), respectively. Identifying these trajectories enables novel, targeted interventions for at-risk parents, underscoring the significance of integrated PICU follow-up care.
- Subjects
RISK assessment; PATIENTS; HEALTH status indicators; RESEARCH funding; HOSPITAL admission &; discharge; QUESTIONNAIRES; CATASTROPHIC illness; DISCHARGE planning; PARENT attitudes; EVALUATION of medical care; DESCRIPTIVE statistics; EMOTIONS; PEDIATRICS; LONGITUDINAL method; INTENSIVE care units; CONVALESCENCE; PSYCHOLOGY of parents; SOCIAL support; PATIENT aftercare; CHILDREN
- Publication
Children, 2024, Vol 11, Issue 8, p948
- ISSN
2227-9067
- Publication type
Article
- DOI
10.3390/children11080948