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- Title
Women’s Experiences of Publicly Funded Non-Invasive Prenatal Testing in Ontario, Canada.
- Authors
Vanstone, Meredith; Yacoub, Karima; Giacomini, Mita; Hulan, Danielle; McDonald, Sarah
- Abstract
Non-invasive prenatal testing (NIPT) via fetal DNA in maternal blood has been publicly funded in Ontario, Canada, for high-risk women since 2014. We solicited women’s experiences and values related to this new health technology to describe how this test is currently being used in Ontario and to provide information about patient priorities to inform future policy decisions about the use of NIPT. Guided by constructivist grounded theory methodology, we interviewed 38 women who had diverse personal experiences with NIPT. Participants’ accounts of their values for decision making about NIPT heavily relied on three mutually modulating factors: timing, accuracy, and risk. The values expressed by women conflict with the way that publicly funded NIPT has typically been implemented in Ontario. We offer recommendations for how NIPT might be integrated into prenatal care pathways in a way more consistent with women’s values.
- Subjects
ONTARIO; WOMEN'S health; ADULTS; GROUNDED theory; HEALTH policy; MEDICAL technology; POLICY sciences; PRENATAL diagnosis; GOVERNMENT aid; GENETIC testing; QUALITATIVE research; PSYCHOLOGY
- Publication
Qualitative Health Research, 2015, Vol 25, Issue 8, p1069
- ISSN
1049-7323
- Publication type
Article
- DOI
10.1177/1049732315589745