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- Title
Palliative Care of End Stage Parkinsonism: An Overview Including the Five Pillars Framework.
- Authors
Hvisdak, Veronica; Huang, Andrew Phillip; Kluger, Benzi Michael
- Abstract
Further, PD affects not only the patient, but also the patient's family and caregivers who struggle with the logistics of caring for someone with a progressive neurological disease including coordinating specialist appointments, enlisting support services, and patient safety. Top ten tips palliative care clinicians should know about Parkinson's disease and related disorders. Palliative care and Parkinson's disease: Outpatient needs and models of care over the disease trajectory. Keywords: palliative care; Parkinson's disease; parkinsonism; end-of-life care EN palliative care Parkinson's disease parkinsonism end-of-life care S63 S67 5 08/28/23 20230802 NES 230802 Parkinson's Disease: More than a Movement Disorder Although the focus of this article is on end-stage parkinsonism, it is important to note that palliative care is not limited to advanced disease/end-of-life and that palliative care needs in parkinsonism can occur at any stage of the illness.[1] Many patients liken the experience of being diagnosed with Parkinson's disease (PD) to having a bomb dropped on them: a theme evocative of destruction, turmoil, and fear.[2] They look to their clinicians, families, and faith at this time, trying to make sense of "a new normal.".
- Subjects
ASPIRATION pneumonia; PALLIATIVE treatment; PARKINSONIAN disorders; SHAME; SERVICES for caregivers; MEDICAL personnel; ADVANCE directives (Medical care); PALLIATIVE medicine
- Publication
Movement Disorders Clinical Practice, 2023, Vol 10, pS63
- ISSN
2330-1619
- Publication type
Article
- DOI
10.1002/mdc3.13620