We found a match
Your institution may have access to this item. Find your institution then sign in to continue.
- Title
An Evaluation of Health-Related Quality of Life (HRQoL) in a Group of 4–7 Year-old Children with Cleft Lip and Palate.
- Authors
Sagheri, Darius; Ravens-Sieberer, Ulrike; Braumann, Bert; Mackensen, Sylvia
- Abstract
Cleft lip and palate (CLP) is the most common congenital craniofacial abnormality. The interventions’ intensity and psychosocial burden of the cleft may have a lasting impact on the child. The aim of this study was to assess the psychosocial functioning of 4 to 7-year-old children with non-syndromic CLP. Health-Related Quality of Life (HRQoL) was assessed using the revised German KINDL HRQoL questionnaire, a five-point, 24-Likert-item questionnaire covering six domains (physical well-being, emotional well-being, self-esteem, family life, friends and school). The total score is the sum of all item scores. In addition, a chronic generic module consisting of six items, and a specific parent module consisting of 22 items have been added to the core KINDL questionnaire. Higher scores indicate better HRQoL. All the parents of 4 to 7-year-old children with non-syndromic CLP treated at the interdisciplinary CLP center at Cologne University Hospital were invited to participate in the study. A total of 74 families were contacted, 61 of whom agreed to study participation (82% response). The 61 children (32 boys and 29 girls) had a mean age of 5.39 years. The mean values for the total scale were slightly lower for children with CLP, but when compared, CLP and non-CLP children revealed no statistically significant difference in HRQoL levels. This study demonstrated that 4 to 7-year-old children with CLP do not appear to experience major psychosocial problems when compared with their non-CLP peers.
- Subjects
CLEFT lip; CLEFT palate children; QUALITY of life; PSYCHOSOCIAL factors; HUMAN abnormalities
- Publication
Journal of Orofacial Orthopedics/Fortschritte der Kieferorthopadie, 2009, Vol 70, Issue 4, p274
- ISSN
1434-5293
- Publication type
Article
- DOI
10.1007/s00056-009-9906-1