Found: 53
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Aberrant splicing contributes to severe α-spectrin-linked congenital hemolytic anemia.
- Published in:
- 2019
- By:
- Publication type:
- journal article
Optimizing language for effective communication of gene therapy concepts with hemophilia patients: a qualitative study.
- Published in:
- 2021
- By:
- Publication type:
- journal article
Incidence and Timing of Thrombosis After the Norwood Procedure in the Single-Ventricle Reconstruction Trial.
- Published in:
- 2020
- By:
- Publication type:
- journal article
A cross-sectional study of bleeding phenotype in haemophilia A carriers.
- Published in:
- British Journal of Haematology, 2015, v. 170, n. 2, p. 223, doi. 10.1111/bjh.13423
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- Publication type:
- Article
The impact of age and CYP2C9 and VKORC1 variants on stable warfarin dose in the paediatric population.
- Published in:
- British Journal of Haematology, 2014, v. 165, n. 6, p. 832, doi. 10.1111/bjh.12817
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- Publication type:
- Article
Severe muscle bleeds in children and young adults with hemophilia A on emicizumab prophylaxis: Real‐world retrospective multi‐institutional cohort.
- Published in:
- American Journal of Hematology, 2023, v. 98, n. 10, p. E285, doi. 10.1002/ajh.27039
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- Publication type:
- Article
Proteinase expression during differentiation of human osteoclasts in vitro.
- Published in:
- Journal of Cellular Biochemistry, 2000, v. 78, n. 4, p. 627, doi. 10.1002/1097-4644(20000915)78:4<627::AID-JCB12>3.0.CO;2-3
- By:
- Publication type:
- Article
International consensus recommendations on the management of people with haemophilia B.
- Published in:
- Therapeutic Advances in Hematology, 2022, v. 13, p. 1, doi. 10.1177/20406207221085202
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- Publication type:
- Article
Design of an international investigator-initiated study on MOdern Treatment of Inhibitor-positiVe pATiEnts with haemophilia A (MOTIVATE).
- Published in:
- Therapeutic Advances in Hematology, 2021, v. 12, p. 1, doi. 10.1177/20406207211032452
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- Publication type:
- Article
Reliability and validity of patient‐reported outcome instruments in US adults with hemophilia B and caregivers in the B‐HERO‐S study.
- Published in:
- European Journal of Haematology, 2018, v. 101, n. 6, p. 781, doi. 10.1111/ejh.13168
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- Publication type:
- Article
Impact of hemophilia B on quality of life in affected men, women, and caregivers--Assessment of patient-reported outcomes in the B-HERO-S study.
- Published in:
- European Journal of Haematology, 2018, v. 100, n. 6, p. 592, doi. 10.1111/ejh.13055
- By:
- Publication type:
- Article
Evaluating the psychosocial impact of hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B- HERO-S) study.
- Published in:
- European Journal of Haematology, 2017, v. 98, p. 3, doi. 10.1111/ejh.12853
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- Publication type:
- Article
Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B- HERO-S) study.
- Published in:
- European Journal of Haematology, 2017, v. 98, p. 5, doi. 10.1111/ejh.12854
- By:
- Publication type:
- Article
Optimizing language for effective communication of gene therapy concepts with hemophilia patients: a qualitative study.
- Published in:
- Orphanet Journal of Rare Diseases, 2021, v. 16, n. 1, p. 1, doi. 10.1186/s13023-020-01555-w
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- Publication type:
- Article
Managing Severe Hemophilia A in Children: Pharmacotherapeutic Options.
- Published in:
- Pediatric Health, Medicine & Therapeutics, 2022, v. 13, p. 27, doi. 10.2147/PHMT.S293246
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- Publication type:
- Article
Correlations between patient-reported outcomes and self-reported characteristics in adults with hemophilia B and caregivers of children with hemophilia B: analysis of the B-HERO-S study.
- Published in:
- Patient Related Outcome Measures, 2019, v. 10, p. 299, doi. 10.2147/PROM.S219166
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- Publication type:
- Article
Effect of Anticoagulant Therapy for 6 Weeks vs 3 Months on Recurrence and Bleeding Events in Patients Younger Than 21 Years of Age With Provoked Venous Thromboembolism: The Kids-DOTT Randomized Clinical Trial.
- Published in:
- 2022
- By:
- Publication type:
- journal article
Adequate menstrual suppression in adolescents with inherited bleeding disorders often requires multiple treatment changes: Retrospective cohort study of a multidisciplinary clinic.
- Published in:
- Pediatric Blood & Cancer, 2024, v. 71, n. 6, p. 1, doi. 10.1002/pbc.30944
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- Publication type:
- Article
Assessment of menstrual health in adolescent and young adults with sickle cell disease.
- Published in:
- Pediatric Blood & Cancer, 2024, v. 71, n. 1, p. 1, doi. 10.1002/pbc.30727
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- Publication type:
- Article
Laboratory misdiagnosis of von Willebrand disease in post‐menarchal females: A multi‐center study.
- Published in:
- American Journal of Hematology, 2020, v. 95, n. 9, p. 1022, doi. 10.1002/ajh.25869
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- Publication type:
- Article
The impact of extended half‐life factor concentrates on prophylaxis for severe hemophilia in the United States.
- Published in:
- American Journal of Hematology, 2020, v. 95, n. 8, p. 960, doi. 10.1002/ajh.25844
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- Publication type:
- Article
Females with FVIII and FIX deficiency have reduced joint range of motion.
- Published in:
- American Journal of Hematology, 2014, v. 89, n. 8, p. 831, doi. 10.1002/ajh.23754
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- Publication type:
- Article
Late Vitamin K Deficiency Bleeding in Infants Whose Parents Declined Vitamin K Prophylaxis -- Tennessee, 2013.
- Published in:
- 2013
- By:
- Publication type:
- Case Study
Potential Undiagnosed VWD Or Other Mucocutaneous Bleeding Disorder Cases Estimated From Private Medical Insurance Claims.
- Published in:
- Journal of Blood Medicine, 2020, v. 11, p. 1, doi. 10.2147/JBM.S224683
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- Publication type:
- Article
Exploring barriers and facilitators to clinical trial enrollment in the context of sickle cell anemia and hydroxyurea.
- Published in:
- Pediatric Blood & Cancer, 2013, v. 60, n. 8, p. 1333, doi. 10.1002/pbc.24486
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- Publication type:
- Article
Predictors of von Willebrand disease in children.
- Published in:
- Pediatric Blood & Cancer, 2012, v. 58, n. 5, p. 736, doi. 10.1002/pbc.23411
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- Publication type:
- Article
Transitioning from emicizumab prophylaxis to valoctocogene roxaparvovec gene therapy: A simulation study for individuals with severe haemophilia A.
- Published in:
- Haemophilia, 2024, v. 30, n. 4, p. 905, doi. 10.1111/hae.15025
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- Publication type:
- Article
Unresolved hemostasis issues in haemophilia.
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- Haemophilia, 2024, v. 30, p. 70, doi. 10.1111/hae.14999
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- Publication type:
- Article
Patient‐centred research agenda for females with bleeding disorders.
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- Haemophilia, 2023, v. 29, n. 6, p. 1665, doi. 10.1111/hae.14883
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- Publication type:
- Article
Von Willebrand Disease: Gaining a global perspective.
- Published in:
- Haemophilia, 2023, v. 29, n. 4, p. 1104, doi. 10.1111/hae.14804
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- Publication type:
- Article
The emotional experience of mothers of children with haemophilia: maternal guilt, effective coping strategies and resilience within the haemophilia community.
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- Haemophilia, 2023, v. 29, n. 2, p. 513, doi. 10.1111/hae.14746
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- Publication type:
- Article
Depression and anxiety in persons with Von Willebrand disease.
- Published in:
- Haemophilia, 2023, v. 29, n. 2, p. 545, doi. 10.1111/hae.14725
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- Publication type:
- Article
Pharmacokinetic parameters of recombinant factor IX Fc fusion protein are not influenced by factor IX antigen levels in subjects from the Phase 3 B‐LONG trial.
- Published in:
- Haemophilia, 2023, v. 29, n. 1, p. 404, doi. 10.1111/hae.14727
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- Publication type:
- Article
Emicizumab dose up‐titration in case of suboptimal bleeding control in people with haemophilia A.
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- Haemophilia, 2023, v. 29, n. 1, p. 90, doi. 10.1111/hae.14679
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- Publication type:
- Article
Bone health in haemophilia carriers and persons with von Willebrand disease: A large database analysis.
- Published in:
- Haemophilia, 2022, v. 28, n. 4, p. 671, doi. 10.1111/hae.14565
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- Publication type:
- Article
Health issues in women and girls affected by haemophilia with a focus on nomenclature, heavy menstrual bleeding, and musculoskeletal issues.
- Published in:
- Haemophilia, 2022, v. 28, p. 18, doi. 10.1111/hae.14535
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- Publication type:
- Article
Health issues in women and girls affected by haemophilia with a focus on nomenclature, heavy menstrual bleeding, and musculoskeletal issues.
- Published in:
- Haemophilia, 2022, v. 28, p. 18, doi. 10.1111/hae.14535
- By:
- Publication type:
- Article
Dental habits and oral health in children and adolescents with bleeding disorders: A single‐institution cross‐sectional study.
- Published in:
- Haemophilia, 2022, v. 28, n. 1, p. 73, doi. 10.1111/hae.14457
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- Publication type:
- Article
Bleeding patterns in patients before and after diagnosis of von Willebrand disease: Analysis of a US medical claims database.
- Published in:
- Haemophilia, 2022, v. 28, n. 1, p. 97, doi. 10.1111/hae.14448
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- Publication type:
- Article
Cover Image.
- Published in:
- Haemophilia, 2021, v. 27, n. 6, p. i, doi. 10.1111/hae.14463
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- Publication type:
- Article
The safety of activated eptacog beta in the management of bleeding episodes and perioperative haemostasis in adult and paediatric haemophilia patients with inhibitors.
- Published in:
- Haemophilia, 2021, v. 27, n. 6, p. 921, doi. 10.1111/hae.14419
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- Publication type:
- Article
Women and girls with haemophilia receiving care at specialized haemophilia treatment centres in the United States.
- Published in:
- Haemophilia, 2021, v. 27, n. 6, p. 1037, doi. 10.1111/hae.14403
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- Publication type:
- Article
Plasma factor IX: The tip of the iceberg?
- Published in:
- Haemophilia, 2021, v. 27, n. 3, p. 329, doi. 10.1111/hae.14324
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- Publication type:
- Article
Occurrence rates of von Willebrand disease among people receiving care in specialized treatment centres in the United States.
- Published in:
- Haemophilia, 2021, v. 27, n. 3, p. 445, doi. 10.1111/hae.14263
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- Publication type:
- Article
Outcomes for studies assessing the efficacy of hemostatic therapies in persons with congenital bleeding disorders.
- Published in:
- Haemophilia, 2021, v. 27, n. 2, p. 211, doi. 10.1111/hae.14247
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- Publication type:
- Article
Women and girls with haemophilia and bleeding tendencies: Outcomes related to menstruation, pregnancy, surgery and other bleeding episodes from a retrospective chart review.
- Published in:
- Haemophilia, 2021, v. 27, n. 2, p. 293, doi. 10.1111/hae.14232
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- Publication type:
- Article
Substitution therapy.
- Published in:
- Haemophilia, 2021, v. 27, p. 53, doi. 10.1111/hae.14072
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- Publication type:
- Article
Health‐related quality of life and caregiver burden of emicizumab in children with haemophilia A and factor VIII inhibitors—Results from the HAVEN 2 study.
- Published in:
- Haemophilia, 2020, v. 26, n. 6, p. 1009, doi. 10.1111/hae.14183
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- Publication type:
- Article
Characterizing female patients with haemophilia A: Administrative claims analysis and medical chart review.
- Published in:
- Haemophilia, 2020, v. 26, n. 3, p. 520, doi. 10.1111/hae.13981
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- Publication type:
- Article
Spontaneous bleeding and poor bleeding response with extended half‐life factor IX products: A survey of select US haemophilia treatment centres.
- Published in:
- Haemophilia, 2020, v. 26, n. 3, p. e128, doi. 10.1111/hae.13943
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- Publication type:
- Article