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- Title
Evolving Information Priorities of Hematologic Cancer Survivors, Caregivers, and Other Relatives.
- Authors
Gansler, Ted; Kepner, James; Willacy, Erika; Soloe, Cindy; Rupert, Douglas; Jarblum, Meredith; Driscoll, David; Orr, Alex; Fitzgerald, Tania; Esparza, Angelina
- Abstract
Little is known about information priorities of people touched by hematologic cancers. We interviewed and surveyed 29 survivors/patients, 13 caregivers, and 19 non-caregiver relatives. Qualitative interviews indicated limited information describing topics other than specific cancer subtypes and treatment options. The survey exercise revealed the following priorities: at diagnosis, cancer types and treatment options; during initial treatment, treatment options and coping with side effects; after treatment, follow-up tests and long-term side effects; at remission/during maintenance treatment at relapse, treatment options and follow-up tests; for patients, cancer types and treatment options; for caregivers, future outlook and support; for non-caregivers, finances. Information priorities vary by role and over time.
- Publication
Journal of Cancer Education, 2010, Vol 25, Issue 3, p302
- ISSN
0885-8195
- Publication type
Article
- DOI
10.1007/s13187-009-0034-9