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- Title
Participation as an outcome measure in psychosocial oncology: content of cancer-specific health-related quality of life instruments.
- Authors
Mei, Sijrike; Dijkers, Marcel; Heerkens, Yvonne
- Abstract
Purpose: To examine to what extent the concept and the domains of participation as defined in the International Classification of Functioning, Disability and Health (ICF) are represented in general cancer-specific health-related quality of life (HRQOL) instruments. Methods: Using the ICF linking rules, two coders independently extracted the meaningful concepts of ten instruments and linked these to ICF codes. Results: The proportion of concepts that could be linked to ICF codes ranged from 68 to 95%. Although all instruments contained concepts linked to Participation (Chapters d7-d9 of the classification of 'Activities and Participation'), the instruments covered only a small part of all available ICF codes. The proportion of ICF codes in the instruments that were participation related ranged from 3 to 35%. 'Major life areas' (d8) was the most frequently used Participation Chapter, with d850 'remunerative employment' as the most used ICF code. Conclusions: The number of participation-related ICF codes covered in the instruments is limited. General cancer-specific HRQOL instruments only assess social life of cancer patients to a limited degree. This study's information on the content of these instruments may guide researchers in selecting the appropriate instrument for a specific research purpose.
- Subjects
HEALTH outcome assessment; QUALITY of life; MEDICAL equipment; PUBLIC health; MEDICAL informatics; CANCER patients
- Publication
Quality of Life Research, 2011, Vol 20, Issue 10, p1617
- ISSN
0962-9343
- Publication type
Article
- DOI
10.1007/s11136-011-9900-0