We found a match
Your institution may have access to this item. Find your institution then sign in to continue.
- Title
The Impact of Juvenile Huntington's Disease on the Family The Case of a Rare Childhood Condition.
- Authors
Brewer, Helen M.; Eatough, Virginia; Smith, Jonathan A.; Stanley, Cath A.; Glendinning, Neil W.; Quarrell, Oliver W. J.
- Abstract
There has been little research into the impact of Juvenile Huntington's Disease (JHD) on the family, and the issues facing this group are poorly understood. The study reported here is part of larger project that aimed to address this. Ten semi-structured interviews with the main carer were carried out, and were analysed using Interpretative Phenomenological Analysis (IPA). This article reports three themes arising from the study relating to the psychosocial impact of JHD on the family: (1) dealing with something so different; (2) lack of understanding (3) isolation. This information is useful in developing appropriate services for families affected by JHD, as well as being of relevance to other childhood conditions.
- Subjects
HUNTINGTON disease; FAMILY studies; PSYCHOSOCIAL factors; IMPACT (Mechanics); ADULT-child relationships; DISEASES
- Publication
Journal of Health Psychology, 2008, Vol 13, Issue 1, p5
- ISSN
1359-1053
- Publication type
Article
- DOI
10.1177/1359105307084307