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- Title
Decision-making around gastrostomy tube feeding in children with neurologic impairment: Engaging effectively with families.
- Authors
Mahant, Sanjay; Cohen, Eyal; Nelson, Katherine E.; Rosenbaum, Peter
- Abstract
Children with neurologic impairment may not be able to feed safely or sufficiently by mouth to maintain an adequate nutritional state. Gastrostomy tube (G-tube) feeding is an important, often essential, intervention in such situations. However, many parents and families struggle with the decision to proceed with G-tube feeding. This practice point reviews common reasons for decisional conflict in parents and explores key aspects of life with G-tube feeding. A framework for shared decision-making and the International Classification of Functioning, Disability and Health (ICF) approach are highlighted. Practical recommendations for clinicians on engaging with families for decision-making around this life-changing intervention are provided.
- Subjects
CONFLICT (Psychology); DECISION making; ENTERAL feeding; PATIENT-family relations; NEUROLOGICAL disorders; PEDIATRICS; QUALITY of life; FEEDING tubes; DISEASE complications
- Publication
Paediatrics & Child Health (1205-7088), 2018, Vol 23, Issue 3, p209
- ISSN
1205-7088
- Publication type
Article
- DOI
10.1093/pch/pxx193